The Ehlers Danlos Society
NEW YORK, NY · Health Care
Built from IRS filings (latest Form 990: tax year 2025). The Ehlers Danlos Society has not reviewed or approved this page. Kindora is not affiliated with it.
Mission
THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGANIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLABORATIVELY TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD.
Financials (IRS Form 990)
Source: IRS Form 990, tax year 2025.
Who funds The Ehlers Danlos Society
$7.3M in foundation grants on record from 45 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Mike & Sofia Segal Foundation | $2.8M | 2 |
| Vanguard Charitable Endowment Program | $2.6M | 4 |
| Network for Good | $702K | 3 |
| Ehlers-Danlos Research Foundation | $297K | 1 |
| Hugh and Charlotte Maclellan Charitable Charitable Trust | $165K | 4 |
| American Online Giving Foundation | $156K | 5 |
| Paypal Charitable Giving Fund | $108K | 3 |
| Fidelity Investments Charitable Gift Fund | $55K | 4 |
| Annette L Smith Foundation | $52K | 3 |
| Abramson Family Foundation | $50K | 3 |
Leadership
LARA BLOOM (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.