From public IRS filings
RETT SYNDROME RESEARCH TRUST INC
TRUMBULL, CT · Health Care
Mission
THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.
Financials (IRS Form 990)
Total revenue
$9.3M
Total expenses
$11.7M
Total assets
$20.4M
Program expense ratio
92%
Source: IRS Form 990, tax year 2024.
Who funds RETT SYNDROME RESEARCH TRUST INC
$6.9M in foundation grants on record from 154 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Tull Family Foundation | $1.4M | 3 |
| Fidelity Investments Charitable Gift Fund | $1M | 4 |
| American Online Giving Foundation | $704K | 5 |
| Donor Advised Charitable Giving | $597K | 4 |
| National Philanthropic Trust | $513K | 4 |
| V & L Marx Foundation | $200K | 4 |
| Crush Rett Syndrome | $200K | 1 |
| Blackbaud Giving Fund | $183K | 4 |
| Winston Foundation Inc C/O L Ippolito (Paul Weiss Et Al) | $115K | 4 |
| Randall Family Foundation | $110K | 1 |
Leadership
MONICA COENRAADS — CHIEF EXECUTIVE OFFICER (Principal officer)
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