From public IRS filings
Rett Syndrome Research Trust
TRUMBULL, CT · Health Care
Built from IRS filings (latest Form 990: tax year 2024). Rett Syndrome Research Trust has not reviewed or approved this page. Kindora is not affiliated with it.
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Mission
THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.
Financials (IRS Form 990)
Total revenue
$9.3M
Total expenses
$11.7M
Total assets
$20.4M
Program expense ratio
92%
Source: IRS Form 990, tax year 2024.
Who funds Rett Syndrome Research Trust
$7.1M in foundation grants on record from 157 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Tull Family Foundation | $1.4M | 3 |
| Fidelity Investments Charitable Gift Fund | $1M | 4 |
| American Online Giving Foundation | $764K | 5 |
| Donor Advised Charitable Giving | $597K | 4 |
| National Philanthropic Trust | $513K | 4 |
| Blackbaud Giving Fund | $271K | 5 |
| V & L Marx Foundation | $200K | 4 |
| Crush Rett Syndrome | $200K | 1 |
| Randall Family Foundation | $145K | 2 |
| Winston Foundation Inc C/O L Ippolito (Paul Weiss Et Al) | $115K | 4 |
Leadership
MONICA COENRAADS — CHIEF EXECUTIVE OFFICER (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.