Osteogenesis Imperfecta Foundation
GAITHERSBURG, MD · Medical Research
Built from IRS filings (latest Form 990: tax year 2023). Osteogenesis Imperfecta Foundation has not reviewed or approved this page. Kindora is not affiliated with it.
Mission
OSTEOGENESIS IMPERFECTA FOUNDATION, INC. (THE FOUNDATION OR OIF) IS A GEORGIA NON-STOCK CORPORATION INCORPORATED IN 1970 WITH THE PRIMARY PURPOSE OF IMPROVING THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY THE BONE DISORDER OSTEOGENESIS IMPERFECTA (OI) THROUGH RESEARCH INTO TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THE FOUNDATION'S HEADQUARTERS ARE LOCATED IN GAITHERSBURG, MARYLAND.
Financials (IRS Form 990)
Source: IRS Form 990, tax year 2023.
Who funds Osteogenesis Imperfecta Foundation
$2.5M in foundation grants on record from 38 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Randolph D Rouse Foundation | $1M | 3 |
| Childrens Brittle Bone Foundation | $407K | 2 |
| Degna Spoldi Private Family Foundation | $200K | 4 |
| Henry and Gilda Buchbinder Family Foundation | $175K | 4 |
| Fidelity Investments Charitable Gift Fund | $164K | 4 |
| American Online Giving Foundation | $92K | 5 |
| National Philanthropic Trust | $53K | 2 |
| Foundation to Eradicate Duchenne | $50K | 2 |
| Donor Advised Charitable Giving | $35K | 2 |
| Paypal Charitable Giving Fund | $27K | 2 |
Leadership
TRACY SMITH HART — CHIEF EXECUTIVE OFFICER (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.