About Foundation to Eradicate Duchenne
The Foundation to Eradicate Duchenne is a 501(c)(3) organization established in 2002 with the goal of finding treatments and an ultimate cure for Duchenne Muscular Dystrophy by supporting translational research and seed funding for infrastructure that facilitates therapeutic advances worldwide.
Focus Areas
Duchenne muscular dystrophy (DMD)Translational biomedical researchClinical trials and outcomes researchDrug development (exon-skipping, vamorolone)Mobile health outcomes
Who They Fund
people with Duchenne muscular dystrophypediatric patients with neuromuscular disordersfamilies and caregivers of DMD patients
Funding Style
disease-specific research fundingtherapeutic/clinical research support
About Foundation to Eradicate Duchenne
Foundation to Eradicate Duchenne Inc centers its grantmaking on one disease area: Duchenne muscular dystrophy. Recent awards show a clear emphasis on research aimed at treatment development, with support going to academic medical centers, research foundations, and mission-aligned nonprofit organizations. In the latest grant list, Children’s National Medical Center received $204,849 in 2023 to fund research for treatment of Duchenne muscular dystrophy, and the Research Foundation for SUNY received $162,308 in 2025 for the same purpose. The foundation’s stated purpose is to support translational research and seed funding for infrastructure that can advance therapeutic progress worldwide. That mission appears in the kinds of organizations it funds: university-affiliated research entities, clinical research centers, and groups tied to neuromuscular treatment development. Several awards recur across years, including support for Children’s National Medical Center, the Research Foundation for SUNY at Binghamton University, and Parent Project Muscular Dystrophy. The pattern points to a funder focused on moving Duchenne science from early research toward therapies, rather than broad health philanthropy.
What Foundation to Eradicate Duchenne Funds
A central theme in the foundation’s giving is translational biomedical research. It supported the Research Foundation for SUNY at Binghamton University with $134,865 in 2024 and $98,835 in 2023, both to fund research for treatment of Duchenne muscular dystrophy. Clinical and treatment-evaluation work also appears in the grant list. Virginia Commonwealth University received $75,000 in 2025, while Duchenne Research in Richmond received $38,703 in 2025, each for research tied to Duchenne muscular dystrophy treatment. The foundation also backs disease-focused organizations that sit closer to the patient community. Parent Project Muscular Dystrophy received $50,000 in 2023, $50,000 in 2024, and $25,000 in 2025 for the same broad research purpose. A smaller award went to the University of Pittsburgh, which received $11,300 in 2025.
How Foundation to Eradicate Duchenne Gives
Typical grant size sits at $25,000 at the 25th percentile, $50,000 at the median, and $111,918 at the 75th percentile. The recent grant list shows repeated awards to the same recipients across multiple years, including Children’s National Medical Center, the Research Foundation for SUNY at Binghamton University, and Parent Project Muscular Dystrophy. That suggests ongoing relationships rather than one-off support. The organization also makes program-related investments, and its active program description says it provides seed and catalytic funding for translational research projects, infrastructure development, and early-stage therapeutic programs. It does not accept unsolicited applications.
Financial Snapshot
Annual Giving
$410K
Total Assets
$1.5M
Total Revenue
$1.1M
Total Expenses
$857K
Typical Grant Size
Most grants fall between $25K and $112K, with a median of $50K.
25th Percentile
$25K
Median
$50K
75th Percentile
$112K
Geographic Reach
National5 states funded
About 13% of grants go to recipients in DC.
Funding intensity
LowHigh
Headquarters
Leadership
JAMES WOOD
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