National Tuberous Sclerosis Association
SILVER SPRING, MD · Diseases & Disorders
Built from IRS filings (latest Form 990: tax year 2024). National Tuberous Sclerosis Association has not reviewed or approved this page. Kindora is not affiliated with it.
Mission
TO IMPROVE QUALITY OF LIFE FOR EVERYONE AFFECTED BY TUBEROUS SCLEROSIS COMPLEX BY CATALYZING NEW TREATMENTS, DRIVING RESEARCH TOWARD A CURE AND EXPANDING ACCESS TO LIFELONG SUPPORT.
Financials (IRS Form 990)
Source: IRS Form 990, tax year 2024.
Who funds National Tuberous Sclerosis Association
$9.8M in foundation grants on record from 61 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Ramesh and Kalpana Bhatia Family Foundation | $2.6M | 8 |
| Fidelity Investments Charitable Gift Fund | $1.5M | 4 |
| Tsc Alliance Endowment Fund | $1.4M | 4 |
| Rothberg Family Charitable Foundation for Childrens Diseases | $1.1M | 4 |
| Wong Family Foundation | $616K | 4 |
| Community Foundation of Northern Colorado | $433K | 2 |
| American Online Giving Foundation | $262K | 5 |
| National Philanthropic Trust | $260K | 4 |
| Ayco Charitable Foundation | $208K | 4 |
| Bny Mellon Charitable Gift Fund C/O Bny Mellon Na | $200K | 3 |
Leadership
KARI L ROSBECK — PRESIDENT & CEO (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.