About Tsc Alliance Endowment Fund
To improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support.
Focus Areas
Tuberous sclerosis complex researchClinical care and accessClinical trials and consortium supportNatural history database and biosample repositoryPatient and family support servicesAdvocacy and public policy
Who They Fund
not specified
Funding Style
program supportproject-specific/restricted fundingoperational/program delivery support
Topics
About Tsc Alliance Endowment Fund
A separate fiduciary organization, Tsc Alliance Endowment Fund Inc receives gifts that are invested to generate an income stream for the TSC Alliance mission. That mission centers on tuberous sclerosis complex: advancing research toward a cure, improving clinical care and access, and expanding lifelong support for people affected by the condition. The fund’s recent support has flowed to the National Tuberous Sclerosis Association in Silver Spring, Maryland, with three program-support grants recorded in the latest grants data. Those awards show the endowment’s role as a source of ongoing mission funding rather than a one-off project sponsor. The organization’s grantmaking sits alongside research, support services, and education priorities tied to TSC, including clinical trials, a natural history database and biosample repository, patient and family support services, and advocacy. Leadership is listed as Kari L. Rosbeck, and the fund operates from Silver Spring while giving only to recipients in Maryland in the data on file.
What Tsc Alliance Endowment Fund Funds
A central theme is sustained support for the TSC Alliance mission itself. In 2025, Tsc Alliance Endowment Fund Inc gave $239,000 to the National Tuberous Sclerosis Association for program support, following a $308,000 grant in 2023 and a $572,625 grant in 2024 to the same recipient. Beyond operating support, the broader grantmaking framework includes research and clinical activity tied to tuberous sclerosis complex. The fund’s active programs reference postdoctoral and early-stage investigator research awards, clinical research consortium support, and biosample-repository seed grants. It also connects to patient-facing work through support services and education, reflecting a mix of research infrastructure and mission delivery.
How Tsc Alliance Endowment Fund Gives
Grant sizes cluster in the low hundreds of thousands: the 25th percentile is $273,500, the median is $308,000, and the 75th percentile is $440,312. The pattern in the recent grants data is recurring rather than isolated, with the same Maryland recipient appearing in 2023, 2024, and 2025. The fund is a separate endowment vehicle that receives gifts and invests them to produce income for mission support. It is listed as making program-support grants, with project-specific and restricted funding noted in the foundation profile.
Financial Snapshot
Annual Giving
$246K
Total Assets
$8.3M
Total Revenue
$830K
Total Expenses
$328K
Typical Grant Size
Most grants fall between $274K and $440K, with a median of $308K.
25th Percentile
$274K
Median
$308K
75th Percentile
$440K
Geographic Reach
Local1 state funded
Funding intensity
LowHigh
Headquarters
Leadership
KARI L ROSBECK
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