To improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support.
A separate fiduciary organization, Tsc Alliance Endowment Fund Inc receives gifts that are invested to generate an income stream for the TSC Alliance mission. That mission centers on tuberous sclerosis complex: advancing research toward a cure, improving clinical care and access, and expanding lifelong support for people affected by the condition. The fund’s recent support has flowed to the National Tuberous Sclerosis Association in Silver Spring, Maryland, with three program-support grants recorded in the latest grants data. Those awards show the endowment’s role as a source of ongoing mission funding rather than a one-off project sponsor. The organization’s grantmaking sits alongside research, support services, and education priorities tied to TSC, including clinical trials, a natural history database and biosample repository, patient and family support services, and advocacy. Leadership is listed as Kari L. Rosbeck, and the fund operates from Silver Spring while giving only to recipients in Maryland in the data on file.
A central theme is sustained support for the TSC Alliance mission itself. In 2025, Tsc Alliance Endowment Fund Inc gave $239,000 to the National Tuberous Sclerosis Association for program support, following a $308,000 grant in 2023 and a $572,625 grant in 2024 to the same recipient. Beyond operating support, the broader grantmaking framework includes research and clinical activity tied to tuberous sclerosis complex. The fund’s active programs reference postdoctoral and early-stage investigator research awards, clinical research consortium support, and biosample-repository seed grants. It also connects to patient-facing work through support services and education, reflecting a mix of research infrastructure and mission delivery.
Grant sizes cluster in the low hundreds of thousands: the 25th percentile is $273,500, the median is $308,000, and the 75th percentile is $440,312. The pattern in the recent grants data is recurring rather than isolated, with the same Maryland recipient appearing in 2023, 2024, and 2025. The fund is a separate endowment vehicle that receives gifts and invests them to produce income for mission support. It is listed as making program-support grants, with project-specific and restricted funding noted in the foundation profile.
$246K
$8.3M
$830K
$328K
Most grants fall between $274K and $440K, with a median of $308K.
25th Percentile
$274K
Median
$308K
75th Percentile
$440K
KARI L ROSBECK
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Giving is local and entirely in Maryland in the available grants data: 100% of grants go to recipients in the HQ state, and Maryland is also the top state by grant count. The recipient city shown in the recent grants list is Silver Spring, MD. The country distribution is entirely U.S.-based, with three grants recorded to U.S. recipients.
It funds support tied to tuberous sclerosis complex, including research toward a cure, clinical care and access, lifelong support, advocacy, and education. The profile also lists active programs for postdoctoral and early-stage investigator awards, clinical research consortium support, biosample-repository seed grants, and support for the TSC Alliance mission overall.
The typical award is in the low hundreds of thousands: the 25th percentile is $273,500, the median is $308,000, and the 75th percentile is $440,312.
In the data on file, all grants go to recipients in Maryland, and the only recipient city shown is Silver Spring, MD. The country distribution is entirely U.S.-based.
Yes. The recent grants list shows the same recipient in 2023, 2024, and 2025, with grants of $308,000, $572,625, and $239,000. That pattern points to ongoing support rather than a one-time award.
It is a separate fiduciary organization that receives gifts and invests them to generate income for the TSC Alliance mission. The profile also tags its support as program support, with project-specific and restricted funding noted.
2026
Source: IRS Form 990-PF, fiscal year 2026.
Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| NATIONAL TUBEROUS SCLEROSIS ASSOCIATION | SILVER SPRING, MD | $246,000 | 2026 | PROGRAM SUPPORT |
| NATIONAL TUBEROUS SCLEROSIS ASSOCIATION | SILVER SPRING, MD | $239,000 | 2025 | PROGRAM SUPPORT |
| NATIONAL TUBEROUS SCLEROSIS ASSOCIATION | SILVER SPRING, MD | $572,625 | 2024 | PROGRAM SUPPORT |
| NATIONAL TUBEROUS SCLEROSIS ASSOCIATION | SILVER SPRING, MD | $308,000 | 2023 | PROGRAM SUPPORT |
Current and upcoming funding from Tsc Alliance Endowment Fund that your nonprofit may be able to apply for.
Who can apply: Investigators and sponsors seeking to partner with the TSC Clinical Research Consortium; studies relevant to individuals with tuberous sclerosis complex across ages and manifestations.
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Create a free accountDeadlines and eligibility are summarized from public sources and may change — always confirm the details on the funder's official application page before applying.
