From public IRS filings
RARE VILLAGE FOUNDATION
MCKINNEY, TX · Medical Research
Mission
TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES
Financials (IRS Form 990)
Total revenue
$3.5M
Total expenses
$3.1M
Total assets
$2M
Program expense ratio
97%
Source: IRS Form 990, tax year 2024.
Who funds RARE VILLAGE FOUNDATION
$3.1M in foundation grants on record from 49 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Vanguard Charitable Endowment Program | $970K | 2 |
| American Online Giving Foundation | $510K | 5 |
| Fidelity Investments Charitable Gift Fund | $222K | 4 |
| Donor Advised Charitable Giving | $193K | 4 |
| Rtw Foundation | $167K | 2 |
| Charities Aid Foundation America | $119K | 3 |
| National Philanthropic Trust | $101K | 4 |
| Marsal Family Foundation C/O Alvarez & Marsal | $100K | 1 |
| Paypal Charitable Giving Fund | $79K | 3 |
| Richard C Seaver 1978 Trust | $79K | 2 |
Leadership
KASEY WOLLEBEN OFFICER — PRESIDENT DIRECTOR (Principal officer)
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