From public IRS filings
NATIONAL ORGANIZATION FOR RARE DISORDERS INC
DANBURY, CT
Mission
NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.
Financials (IRS Form 990)
Total revenue
$50.7M
Total expenses
$43M
Total assets
$72.3M
Program expense ratio
8327%
Source: IRS Form 990, tax year 2024.
Who funds NATIONAL ORGANIZATION FOR RARE DISORDERS INC
$3M in foundation grants on record from 17 funders — from IRS 990 grant line items.
| Funder | Total given | Grants |
|---|---|---|
| Critical Path Institute | $6.4M | 4 |
| National Tuberous Sclerosis Association | $725K | 6 |
| Silicon Valley Community Foundation | $200K | 1 |
| American Online Giving Foundation | $186K | 4 |
| Fidelity Investments Charitable Gift Fund | $184K | 3 |
| Northwestern University | $163K | 3 |
| Donor Advised Charitable Giving | $151K | 4 |
| Alpha-1 Foundation | $80K | 3 |
| Givinga Foundation | $33K | 2 |
| Network for Good | $32K | 2 |
Leadership
NEETA KOTECHA — VP AND CHIEF FINANCIAL OFFICER (Principal officer)
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