From public IRS filings
National Organization for Rare Disorders
DANBURY, CT
Built from IRS filings (latest Form 990: tax year 2024). National Organization for Rare Disorders has not reviewed or approved this page. Kindora is not affiliated with it.
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Mission
NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.
Financials (IRS Form 990)
Total revenue
$50.7M
Total expenses
$43M
Total assets
$72.3M
Program expense ratio
83%
Source: IRS Form 990, tax year 2024.
Who funds National Organization for Rare Disorders
$9.4M in foundation grants on record from 57 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Critical Path Institute | $6.4M | 4 |
| National Tuberous Sclerosis Association | $525K | 4 |
| American Online Giving Foundation | $258K | 5 |
| Blackbaud Giving Fund | $238K | 3 |
| Silicon Valley Community Foundation | $200K | 1 |
| Northwestern University | $195K | 4 |
| Michael Finkelstein and Sue-Ann Friedman Foundation | $170K | 3 |
| Fidelity Investments Charitable Gift Fund | $164K | 4 |
| Donor Advised Charitable Giving | $151K | 4 |
| Leslie & Roslyn Goldstein Foundation | $150K | 2 |
Leadership
NEETA KOTECHA — VP AND CHIEF FINANCIAL OFFICER (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.