From public IRS filings
Myotonic Dystrophy Foundation
OAKLAND, CA · Diseases & Disorders
Built from IRS filings (latest Form 990: tax year 2023). Myotonic Dystrophy Foundation has not reviewed or approved this page. Kindora is not affiliated with it.
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Mission
To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
Financials (IRS Form 990)
Total revenue
$2.4M
Total expenses
$3.8M
Total assets
$5.5M
Program expense ratio
72%
Source: IRS Form 990, tax year 2023.
Who funds Myotonic Dystrophy Foundation
$3.2M in foundation grants on record from 59 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Network for Good | $689K | 3 |
| Donor Advised Charitable Giving | $385K | 4 |
| Fidelity Investments Charitable Gift Fund | $311K | 4 |
| National Philanthropic Trust | $192K | 3 |
| Athens Area Community Foundation | $123K | 4 |
| Harold J Bowen Jr & Duval Bowen Family Foundation | $120K | 4 |
| Oregon Community Foundation | $114K | 3 |
| Patricia A and Milton C Bade Foundation | $114K | 4 |
| American Online Giving Foundation | $98K | 5 |
| Leslie and Sheila Klein Foundation | $83K | 2 |
Leadership
TANYA STEVENSON — CEO (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.