From public IRS filings
MYOTONIC DYSTROPHY FOUNDATION
OAKLAND, CA · Diseases & Disorders
Mission
To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
Financials (IRS Form 990)
Total revenue
$2.4M
Total expenses
$3.8M
Total assets
$5.5M
Program expense ratio
7192%
Source: IRS Form 990, tax year 2023.
Who funds MYOTONIC DYSTROPHY FOUNDATION
$2.2M in foundation grants on record from 34 funders — from IRS 990 grant line items.
| Funder | Total given | Grants |
|---|---|---|
| Network for Good | $491K | 2 |
| Donor Advised Charitable Giving | $385K | 4 |
| Fidelity Investments Charitable Gift Fund | $201K | 3 |
| National Philanthropic Trust | $192K | 3 |
| Athens Area Community Foundation | $123K | 4 |
| American Online Giving Foundation | $74K | 4 |
| Oregon Community Foundation | $51K | 2 |
| Silicon Valley Community Foundation | $50K | 1 |
| American Endowment Foundation | $30K | 1 |
| Marin Community Foundation | $27K | 2 |
Leadership
TANYA STEVENSON — CEO (Principal officer)
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