From public IRS filings
MYOTONIC DYSTROPHY FOUNDATION
OAKLAND, CA · Diseases & Disorders
Mission
To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
Financials (IRS Form 990)
Total revenue
$2.4M
Total expenses
$3.8M
Total assets
$5.5M
Program expense ratio
72%
Source: IRS Form 990, tax year 2023.
Who funds MYOTONIC DYSTROPHY FOUNDATION
$3.2M in foundation grants on record from 58 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Network for Good | $689K | 3 |
| Donor Advised Charitable Giving | $385K | 4 |
| Fidelity Investments Charitable Gift Fund | $311K | 4 |
| National Philanthropic Trust | $192K | 3 |
| Athens Area Community Foundation | $123K | 4 |
| Harold J Bowen Jr & Duval Bowen Family Foundation | $120K | 4 |
| Oregon Community Foundation | $114K | 3 |
| Patricia A and Milton C Bade Foundation | $114K | 4 |
| Feil Family Foundation (Formerly Louis & Gertrude Feil Foundation Inc) | $85K | 3 |
| American Online Giving Foundation | $83K | 5 |
Leadership
TANYA STEVENSON — CEO (Principal officer)
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