From public IRS filings
FSHD SOCIETY
ABINGTON, MA · Medical Research
Mission
FIND TREATMENTS AND A CURE FOR FSHD WHILE EMPOWERING OUR FAMILIES
Financials (IRS Form 990)
Total revenue
$4.5M
Total expenses
$4.3M
Total assets
$6.4M
Program expense ratio
78%
Source: IRS Form 990, tax year 2023.
Who funds FSHD SOCIETY
$1.9M in foundation grants on record from 48 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Fidelity Investments Charitable Gift Fund | $849K | 4 |
| American Online Giving Foundation | $280K | 5 |
| Robert C and Ruth Womack Foundation | $190K | 2 |
| Vanguard Charitable Endowment Program | $109K | 4 |
| Donor Advised Charitable Giving | $90K | 4 |
| Collier Community Foundation | $74K | 1 |
| Us Charitable Gift Trust | $40K | 2 |
| Foglia Family Foundation | $40K | 2 |
| Tribune-Review Charities | $35K | 1 |
| Muscular Dystrophy Association | $26K | 1 |
Leadership
MARK A STONE — CEO & PRESIDENT (Principal officer)
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