From public IRS filings

FAMILIES OF SMA

ELK GROVE VLG, IL · Diseases & Disorders

EIN (Tax ID): 36-3320440Latest Form 990: 2024IRS ruling year: 1985Find their 990 filing →

Mission

TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.

Financials (IRS Form 990)

Total revenue
$15.2M
Total expenses
$14M
Total assets
$10.6M
Program expense ratio
77%

Source: IRS Form 990, tax year 2024.

Who funds FAMILIES OF SMA

$4.3M in foundation grants on record from 91 funders — matched from IRS 990 grant line items. Some matches may be approximate.

FunderTotal givenGrants
Luke 181 Foundation$1.5M3
American Online Giving Foundation$456K5
Fidelity Investments Charitable Gift Fund$327K4
Vanguard Charitable Endowment Program$307K4
Donor Advised Charitable Giving$181K4
Paypal Charitable Giving Fund$153K3
Weisman Family Foundation C/O Robert D Weisman$147K2
Charities Aid Foundation America$111K5
Gs Donor Advised Philanthropy Fund for Wealth Management$101K1
Toby and Nataly Ritter Family Foundation$87K2

Leadership

KENNETH HOBBY — PRESIDENT (Principal officer)

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