From public IRS filings
FAMILIES OF SMA
ELK GROVE VLG, IL · Diseases & Disorders
Mission
TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Financials (IRS Form 990)
Total revenue
$15.2M
Total expenses
$14M
Total assets
$10.6M
Program expense ratio
7732%
Source: IRS Form 990, tax year 2024.
Who funds FAMILIES OF SMA
$1.3M in foundation grants on record from 15 funders — from IRS 990 grant line items.
| Funder | Total given | Grants |
|---|---|---|
| Luke 181 Foundation | $1.5M | 3 |
| American Online Giving Foundation | $334K | 4 |
| Vanguard Charitable Endowment Program | $307K | 4 |
| Donor Advised Charitable Giving | $181K | 4 |
| Fidelity Investments Charitable Gift Fund | $163K | 2 |
| Charities Aid Foundation America | $111K | 5 |
| National Philanthropic Trust | $76K | 2 |
| Ctia - the Wireless Association | $50K | 2 |
| Blackbaud Giving Fund | $48K | 1 |
| Paypal Charitable Giving Fund | $47K | 2 |
Leadership
KENNETH HOBBY — PRESIDENT (Principal officer)
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