From public IRS filings
Families of Sma
ELK GROVE VLG, IL · Diseases & Disorders
Built from IRS filings (latest Form 990: tax year 2024). Families of Sma has not reviewed or approved this page. Kindora is not affiliated with it.
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Mission
TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Financials (IRS Form 990)
Total revenue
$15.2M
Total expenses
$14M
Total assets
$10.6M
Program expense ratio
77%
Source: IRS Form 990, tax year 2024.
Who funds Families of Sma
$4.9M in foundation grants on record from 92 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Luke 181 Foundation | $2M | 4 |
| American Online Giving Foundation | $508K | 5 |
| Fidelity Investments Charitable Gift Fund | $327K | 4 |
| Vanguard Charitable Endowment Program | $307K | 4 |
| Donor Advised Charitable Giving | $181K | 4 |
| Paypal Charitable Giving Fund | $153K | 3 |
| Weisman Family Foundation C/O Robert D Weisman | $147K | 2 |
| Charities Aid Foundation America | $111K | 5 |
| Gs Donor Advised Philanthropy Fund for Wealth Management | $101K | 1 |
| Blackbaud Giving Fund | $93K | 3 |
Leadership
KENNETH HOBBY — PRESIDENT (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.