From public IRS filings
DYSTONIA MEDICAL RESEARCH FOUNDATION
CHICAGO, IL · Medical Research
Mission
THE MISSION OF THE DMRF IS TO ADVANCE RESEARCH FOR MORE EFFECTIVE TREATMENTS AND ULTIMATELY A CURE FOR DYSTONIA, TO PROMOTE AWARENESS AND EDUCATION AND TO SUPPORT THE WELL BEING OF DYSTONIA AFFECTED INDIVIDUALS AND FAMILIES.
Financials (IRS Form 990)
Total revenue
$3.2M
Total expenses
$3M
Total assets
$6.4M
Program expense ratio
80%
Source: IRS Form 990, tax year 2024.
Who funds DYSTONIA MEDICAL RESEARCH FOUNDATION
$2M in foundation grants on record from 68 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Emory University | $530K | 1 |
| Fidelity Investments Charitable Gift Fund | $220K | 4 |
| Donor Advised Charitable Giving | $167K | 4 |
| C Northrop & A Marder Pond Fdn | $150K | 3 |
| National Philanthropic Trust | $107K | 4 |
| St Louis Community Foundation | $100K | 1 |
| Circle of Service Foundation | $74K | 5 |
| Dorothy and Murray Feiss Foundation | $69K | 2 |
| American Online Giving Foundation | $62K | 5 |
| Vanguard Charitable Endowment Program | $56K | 3 |
Leadership
JANET HIESHETTER — Treasurer (Principal officer)
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