Dravet Syndrome Foundation
CHERRY HILL, NJ · Philanthropy & Voluntarism
Built from IRS filings (latest Form 990: tax year 2024). Dravet Syndrome Foundation has not reviewed or approved this page. Kindora is not affiliated with it.
Mission
The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families.
Financials (IRS Form 990)
Source: IRS Form 990, tax year 2024.
Who funds Dravet Syndrome Foundation
$3.4M in foundation grants on record from 60 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Marlins for Mason | $1.1M | 3 |
| Julian Chang Family Foundation for Dravet | $558K | 5 |
| Fidelity Investments Charitable Gift Fund | $348K | 4 |
| American Online Giving Foundation | $250K | 5 |
| Donor Advised Charitable Giving | $163K | 4 |
| Homer & Martha Gudelsky Family Fdn | $150K | 3 |
| George and June Block Family Foundation | $120K | 4 |
| Raymond James Charitable Endowment Fund | $81K | 4 |
| Paypal Charitable Giving Fund | $69K | 2 |
| Marilyn Lichtman Foundation | $50K | 1 |
Leadership
Ross Nicholas — President (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.