From public IRS filings
CURE SANFILIPPO FOUNDATION
COLUMBIA, SC · Medical Research
Mission
To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.
Financials (IRS Form 990)
Total revenue
$2.8M
Total expenses
$1.6M
Total assets
$13.9M
Program expense ratio
80%
Source: IRS Form 990, tax year 2024.
Who funds CURE SANFILIPPO FOUNDATION
$2.1M in foundation grants on record from 54 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Paypal Charitable Giving Fund | $670K | 3 |
| Carolyn Smith Foundation | $400K | 3 |
| American Online Giving Foundation | $177K | 5 |
| Fidelity Investments Charitable Gift Fund | $122K | 4 |
| Vanguard Charitable Endowment Program | $115K | 2 |
| Donor Advised Charitable Giving | $55K | 3 |
| Enpro Foundation | $52K | 3 |
| Hazen B Hinman Sr Foundation | $52K | 4 |
| Paragano Family Foundation Inc 5484-05-42 | $50K | 2 |
| Griffin Charitable Foundation | $43K | 3 |
Leadership
Glenn O'Neill — President (Principal officer)
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