From public IRS filings
Creutzfeldt-Jakob Disease Foundation
FAIRLAWN, OH
Built from IRS filings (latest Form 990: tax year 2024). Creutzfeldt-Jakob Disease Foundation has not reviewed or approved this page. Kindora is not affiliated with it.
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Mission
TO SUPPORT FAMILIES AFFECTED BY PRION DISEASE, RAISE AWARENESS, AND (CONTINUED ON SCHEDULE O) SUPPORT MEDICAL EDUCATION AND RESEARCH.
Financials (IRS Form 990)
Total revenue
$2.9M
Total expenses
$1.9M
Total assets
$9.2M
Program expense ratio
86%
Source: IRS Form 990, tax year 2024.
Who funds Creutzfeldt-Jakob Disease Foundation
$1.8M in foundation grants on record from 52 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Joanna Mcneil Trust | $375K | 1 |
| Jeffrey and Mary Smith Family Foundation | $285K | 4 |
| Jewish Community Foundation of Los Angeles | $200K | 2 |
| American Online Giving Foundation | $184K | 5 |
| Paypal Charitable Giving Fund | $129K | 3 |
| Fidelity Investments Charitable Gift Fund | $124K | 4 |
| Donor Advised Charitable Giving | $81K | 4 |
| Cape Cod Foundation | $75K | 4 |
| Thrivent Charitable Impact & Investing | $75K | 1 |
| Blackbaud Giving Fund | $58K | 3 |
Leadership
DEBORAH YOBS — PRESIDENT/EXECUTIVE DIRECTOR (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.