From public IRS filings
CHARCOT-MARIE-TOOTH ASSOCIATION
GLENOLDEN, PA · Diseases & Disorders
Mission
TO SUPPORT THE DEVELOPMENT OF NEW DRUGS TO TREAT CHARCOT-MARIE-TOOTH DISEASE (CMT), TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH CMT AND UNTIMATELY, TO FUND A CURE.
Financials (IRS Form 990)
Total revenue
$5.8M
Total expenses
$5.8M
Total assets
$9.5M
Program expense ratio
89%
Source: IRS Form 990, tax year 2024.
Who funds CHARCOT-MARIE-TOOTH ASSOCIATION
$4.3M in foundation grants on record from 76 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| Fidelity Investments Charitable Gift Fund | $1.7M | 4 |
| Skylight Charitable Trust | $500K | 1 |
| American Online Giving Foundation | $267K | 5 |
| Morgan Stanley Global Impact Funding Trust | $255K | 3 |
| Vanguard Charitable Endowment Program | $236K | 4 |
| Donor Advised Charitable Giving | $220K | 4 |
| Greater Cincinnati Foundation | $119K | 4 |
| Muscular Dystrophy Association | $105K | 2 |
| Greater Washington Community Foundation | $103K | 3 |
| Medhat F Sami Foundation | $100K | 4 |
Leadership
SUZANNE BRUHN — CHIEF EXECUTIVE OFFICER (Principal officer)
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