HDSA works to improve the lives of people with Huntington’s disease and their families by funding research to find effective treatments, providing clinical and community services, education, and advocacy.
Huntington's Disease Society of America Inc. directs its giving toward Huntington’s disease care infrastructure and research, with recent awards that include multi-hundred-thousand-dollar grants to university medical centers and research institutions. The pattern in the recent grants list shows support for clinical services as well as community-facing programs, alongside funding for research and training tied to the disease. Among the largest recent awards, the foundation gave $300,000 to The Regents of the University of California Irvine in 2025 and $299,138 to The University of Texas Health Science Center at Houston in 2024. Other large grants reached institutions such as the Regents of the University of CA San Diego, The Salk Institute for Biological Studies, and New York University Grossman School of Medicine. That mix points to a funder working through established medical and academic partners rather than individual awards. Its active programs reinforce that structure. HDSA supports Centers of Excellence, funds the Donald A. King Summer Research Fellowship, and runs research initiatives tied to human biology and Huntington’s disease. The organization also funds clinical care capacity, education, advocacy, and services for patients and caregivers.
Clinical care is a major strand of support. In 2025, Huntington's Disease Society of America Inc. awarded $180,000 to New York University Grossman School of Medicine and $149,111 to Massachusetts General Hospital, both marked for community services, while the Centers of Excellence programs are built to establish and expand multidisciplinary HD clinics. Research is the other clear pillar. The Donald A. King Summer Research Fellowship supports Huntington’s disease research training, and the HDSA Huntington’s Disease Human Biology Project is described as the society’s largest research initiative. Support also extends to university-based service programs. The foundation gave $136,830 to the Research Foundation of the City University of New York in 2024, and its active programs include education and training, advocacy, and patient and caregiver services. These grants and programs suggest a mix of clinical capacity building and disease-specific support work.
$2.1M
$17.9M
$11.2M
$9.4M
Most grants fall between $20K and $43K, with a median of $30K.
25th Percentile
$20K
Median
$30K
75th Percentile
$43K
About 9% of grants go to recipients in CA.
LOUISE VETTER
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Recent grants cluster around mid-sized awards, with a typical grant size of $19,500 at the 25th percentile, a median of $30,000, and $42,831 at the 75th percentile. The recent list also includes repeated awards to the same institutions across multiple years, including Vanderbilt University Medical Center, the University of Washington, University of Central Florida, and University of Texas Health Science Center, showing continuing relationships rather than one-off gifts. The organization does not fund individuals, and it is not a program-related-investment maker. Several active programs accept unsolicited applications, including the Donald A. King Summer Research Fellowship and Centers of Excellence programs.
Giving is national and concentrated in U.S. institutions. By count, Tennessee is the top state for recipient locations, even though the headquarters is in New York. Recent grants reach centers in California, Texas, Washington, Tennessee, and New York, with multiple awards in Los Angeles, Irvine, La Jolla, Houston, Seattle, and Nashville. All recent grants in the provided list went to U.S. recipients, and 9% of grants were made to recipients in New York.
The foundation gives to universities, medical centers, hospitals, and research institutions. Recent grants include The Regents of the University of California Irvine, The University of Texas Health Science Center at Houston, New York University Grossman School of Medicine, and Massachusetts General Hospital.
Its stated focus areas are Huntington's disease research, clinical care and centers of excellence, patient and caregiver services, education and training, and advocacy. Active programs also include the Centers of Excellence support programs and the Donald A. King Summer Research Fellowship.
Typical grant size is $19,500 at the 25th percentile, $30,000 at the median, and $42,831 at the 75th percentile. The recent grants list also shows larger awards, including several in the $100,000 to $300,000 range.
Yes. The recent grants list shows repeated awards to the same recipients across years, including Vanderbilt University Medical Center, the University of Washington, the University of Central Florida Board of Trustees, and University of Texas Health Science Center.
Yes. The Centers of Excellence programs and the Donald A. King Summer Research Fellowship both accept unsolicited applications. The provided program descriptions also note an application or letter-of-intent process for Centers of Excellence designation.
2026
Source: IRS Form 990-PF, fiscal year 2026.
Current and upcoming funding from Huntington'S Disease Society of America that your nonprofit may be able to apply for.
Who can apply: HD clinics that were not Centers of Excellence in prior year and that are >150 miles from an existing COE or located in a state without a COE or serving a different insured HD population within the same state. Specific eligibility and program description provided in COE Program Description PDF.
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Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| REGENTS OF THE UNIVERSITY OF MICHIGAN | ANN ARBOR, MI | $100,000 | 2026 | RESEARCH |
| MASSACHUSETTS GENERAL HOSPITAL | BOSTON, MA | $90,000 | 2026 | COMMUNITY SERVICES |
| MASSACHUSETTS GENERAL HOSPITAL | BOSTON, MA | $90,000 | 2026 | RESEARCH |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH | SACRAMENTO, CA | $60,500 | 2026 | COMMUNITY SERVICES |
| UNIV OF WASHINGTON | SEATTLE, WA | $50,000 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER | HOUSTON, TX | $47,000 | 2026 | COMMUNITY SERVICES |
| TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | PHILADELPHIA, PA | $46,500 | 2026 | COMMUNITY SERVICES |
| VANDERBILT UNIVERSITY MEDICAL CENTER | NASHVILLE, TN | $45,000 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF SOUTH FLORIDA | TAMPA, FL | $42,750 | 2026 | COMMUNITY SERVICES |
| OHIO STATE UNIVERSITY WEXNER MEDICAL CENTER | COLUMBUS, OH | $42,750 | 2026 | COMMUNITY SERVICES |
| REGENTS UNIVERSITY OF CA LOS ANGELES | LOS ANGELES, CA | $42,500 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF ALABAMA BIRMINGHAM | BIRMINGHAM, AL | $42,000 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF CALIFORNIA SAN DIEGO | LA JOLLA, CA | $41,750 | 2026 | COMMUNITY SERVICES |
| RUSH UNIVERSITY MEDICAL CENTER | CHICAGO, IL | $41,500 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF ROCHESTER MEDICAL CENTER | ROCHESTER, NY | $41,000 | 2026 | COMMUNITY SERVICES |
| THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK | NEW YORK, NY | $40,500 | 2026 | COMMUNITY SERVICES |
| THE RECTOR & VISITORS OF THE UNIVERSITY OF VIRGINIA | CHARLOTTESVILLE, VA | $39,000 | 2026 | COMMUNITY SERVICES |
| WASHINGTON UNIVERSITY | ST LOUIS, MO | $37,500 | 2026 | COMMUNITY SERVICES |
| BETH ISRAEL DEACONESS MEDICAL CENTER | BOSTON, MA | $37,500 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF IOWA DEPARTMENT OF NEUROLOGY | IOWA CITY, IA | $36,750 | 2026 | COMMUNITY SERVICES |
| JOHNS HOPKINS UNIVERSITY | BALTIMORE, MD | $36,750 | 2026 | COMMUNITY SERVICES |
| MOVEMENT DISORDERS FOUNDATION | ENGLEWOOD, CO | $36,500 | 2026 | COMMUNITY SERVICES |
| NORTHWESTERN UNIVERSITY | CHICAGO, IL | $35,750 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF PITTSBURGH PHYSICIANS | PITTSBURGH, PA | $35,000 | 2026 | COMMUNITY SERVICES |
| ALBANY MEDICAL COLLEGE | ALBANY, NY | $34,000 | 2026 | COMMUNITY SERVICES |
| GEORGETOWN UNIVERSITY HD CERC | WASHINGTON, DC | $34,000 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF CINCINNATI | CINCINNATI, OH | $32,250 | 2026 | COMMUNITY SERVICES |
| DUKE UNIVERSITY MEDICAL CENTER | DURHAM, NC | $31,500 | 2026 | COMMUNITY SERVICES |
| HENNEPIN HEALTHCARE RESEARCH INSTITUTE | MINNEAPOLIS, MN | $29,750 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF COLORADO DENVER | DENVER, CO | $28,750 | 2026 | COMMUNITY SERVICES |
| BARROW NEUROLOGICAL INSTITUTE | PHOENIX, AZ | $28,000 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF UTAH | SALT LAKE CITY, UT | $28,000 | 2026 | COMMUNITY SERVICES |
| EMORY UNIVERSITY | ATLANTA, GA | $28,000 | 2026 | COMMUNITY SERVICES |
| CLEVELAND CLINIC FOUNDATION | CLEVELAND, OH | $28,000 | 2026 | COMMUNITY SERVICES |
| MASSACHUSETTS GENERAL HOSPITAL | CHARLESTOWN, MA | $28,000 | 2026 | RESEARCH |
| OCHSNER HEALTH SYSTEM | NEW ORLEANS, LA | $27,250 | 2026 | COMMUNITY SERVICES |
| THE REGENT OF THE UNIVERSITY OF CALIFORNIA-SAN FRANCISCO | LOS ANGELES, CA | $27,250 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF FLORIDA | GAINESVILLE, FL | $27,250 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF LOUISVILLE | LOUISVILLE, KY | $27,250 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF MIAMI | ATLANTA, GA | $23,750 | 2026 | COMMUNITY SERVICES |
| INDIANA UNIVERSITY | BLOOMINGTON, IN | $23,750 | 2026 | COMMUNITY SERVICES |
| VIRGINIA COMMONWEALTH UNIVERSITY | RICHMOND, VA | $23,000 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF VERMONT HEALTH NETWORK | BURLINGTON, VT | $22,500 | 2026 | COMMUNITY SERVICES |
| PRISMA HEALTH - MIDLAND | COLUMBIA, SC | $22,000 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY NEUROLOGY INC | BUFFALO, NY | $22,000 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF CONNECTICUT HEALTH CENTER | FARMINGTON, CT | $21,250 | 2026 | COMMUNITY SERVICES |
| MEDICAL UNIVERSITY OF SOUTH CAROLINA | CHARLESTON, SC | $20,000 | 2026 | COMMUNITY SERVICES |
| HENRY FORD HEALTH SYSTEM | DETROIT, MI | $20,000 | 2026 | COMMUNITY SERVICES |
| SANFORD HEALTH | FARGO, ND | $18,000 | 2026 | COMMUNITY SERVICES |
| UNIVERSITY OF WISCONSIN - MADISON | MADISON, WI | $18,000 | 2026 | COMMUNITY SERVICES |
REGENTS OF THE UNIVERSITY OF MICHIGAN
$100,000RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
$90,000COMMUNITY SERVICES
MASSACHUSETTS GENERAL HOSPITAL
$90,000RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS HEALTH
$60,500COMMUNITY SERVICES
UNIV OF WASHINGTON
$50,000COMMUNITY SERVICES
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER
$47,000COMMUNITY SERVICES
COMMUNITY SERVICES
UNIVERSITY OF SOUTH FLORIDA
$42,750COMMUNITY SERVICES
OHIO STATE UNIVERSITY WEXNER MEDICAL CENTER
$42,750COMMUNITY SERVICES
REGENTS UNIVERSITY OF CA LOS ANGELES
$42,500COMMUNITY SERVICES
UNIVERSITY OF ALABAMA BIRMINGHAM
$42,000COMMUNITY SERVICES
UNIVERSITY OF CALIFORNIA SAN DIEGO
$41,750COMMUNITY SERVICES
UNIVERSITY OF ROCHESTER MEDICAL CENTER
$41,000COMMUNITY SERVICES
COMMUNITY SERVICES
THE RECTOR & VISITORS OF THE UNIVERSITY OF VIRGINIA
$39,000COMMUNITY SERVICES
UNIVERSITY OF IOWA DEPARTMENT OF NEUROLOGY
$36,750COMMUNITY SERVICES
MOVEMENT DISORDERS FOUNDATION
$36,500COMMUNITY SERVICES
UNIVERSITY OF PITTSBURGH PHYSICIANS
$35,000COMMUNITY SERVICES
ALBANY MEDICAL COLLEGE
$34,000COMMUNITY SERVICES
UNIVERSITY OF CINCINNATI
$32,250COMMUNITY SERVICES
UNIVERSITY OF COLORADO DENVER
$28,750COMMUNITY SERVICES
UNIVERSITY OF UTAH
$28,000COMMUNITY SERVICES
CLEVELAND CLINIC FOUNDATION
$28,000COMMUNITY SERVICES
MASSACHUSETTS GENERAL HOSPITAL
$28,000RESEARCH
THE REGENT OF THE UNIVERSITY OF CALIFORNIA-SAN FRANCISCO
$27,250COMMUNITY SERVICES
UNIVERSITY OF FLORIDA
$27,250COMMUNITY SERVICES
INDIANA UNIVERSITY
$23,750COMMUNITY SERVICES
VIRGINIA COMMONWEALTH UNIVERSITY
$23,000COMMUNITY SERVICES
UNIVERSITY OF VERMONT HEALTH NETWORK
$22,500COMMUNITY SERVICES
UNIVERSITY NEUROLOGY INC
$22,000COMMUNITY SERVICES
UNIVERSITY OF CONNECTICUT HEALTH CENTER
$21,250COMMUNITY SERVICES
MEDICAL UNIVERSITY OF SOUTH CAROLINA
$20,000COMMUNITY SERVICES
SANFORD HEALTH
$18,000COMMUNITY SERVICES
UNIVERSITY OF WISCONSIN - MADISON
$18,000COMMUNITY SERVICES
