The Ehlers-Danlos Society is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danoses (EDS), hypermobility spectrum disorders (HSD), and related conditions. We provide global learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population.
The Ehlers-danlos Society’s largest recent grant was a $766,545 research award to The Broad Institute in Cambridge, Massachusetts. That scale fits an organization that funds scientific work on Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) through research grants, microgrants, scholarships, and center-of-excellence development. Its recent funding includes major awards to Stanford University and Children’s Hospital Corporation, showing support for both university-based and hospital-based research settings. The society also backs specific research programs, including biomarker-focused RFPs and smaller microgrants for preliminary studies such as surveys and analysis of existing data. Across its funding portfolio, the society emphasizes project-specific support for clinical research, basic science, translational work, and care-network building. The pattern points to a funder that invests in evidence generation at multiple stages, from early exploratory work to larger studies and infrastructure tied to EDS and HSD. Leadership is listed as Lara Bloom, and the organization’s work is organized around the needs of people affected by EDS, HSD, and related conditions.
In medical research, the society gave $332,067 to Stanford University for a research grant and $158,565 to Children’s Hospital Corporation for a research grant. Those awards sit alongside active research funding opportunities for clinical research, basic science, epidemiology, diagnostic tools, and therapeutics development related to EDS and HSD. The society also directs funding toward biomarker work: a 2024 skin biomarker round supports studies of dermal extracellular matrix ultrastructure, cellular morphology, and inflammatory or autoimmune drivers in hEDS and HSD. Another 2024 RFP focuses on diagnostic, pathophysiological, prognostic, and therapeutic-response markers, including omics and histology. Beyond research, the society funds education and capacity building through scholarships tied to events and the CORE Network of Excellence, which supports centers of clinical and research excellence for EDS and HSD.
Typical award size sits at $78,136 at the 25th percentile, $141,786 at the median, and $156,424 at the 75th percentile. The recent record includes both six-figure and smaller grants, from microgrants up to major research awards. Some recipients reappear across years: Children’s Hospital Corporation and Carle Foundation Hospital each received grants in more than one year, which suggests recurring relationships rather than one-off awards only. The society operates with structured, project-specific funding rather than program-related investments, and it does not fund individuals. Active opportunities include both unsolicited and invitation-based or periodically posted research routes, depending on the program.
$2.8M
$9.6M
$9.6M
$9.4M
Most grants fall between $78K and $156K, with a median of $142K.
25th Percentile
$78K
Median
$142K
75th Percentile
$156K
About 0% of grants go to recipients in MA.
LARA BLOOM
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Giving is national, and every recent grant in the provided sample went to U.S. recipients. California is the top state by grant count, with Stanford University in Stanford, CA appearing among the recent awards. Other recipient cities include Cambridge, Boston, Baltimore, Charleston, Urbana, University Park, and Beltsville. The foundation’s grants do not go to recipients in its New York headquarters state in the recent sample.
The society funds research and capacity-building tied to EDS and HSD. Recent and active programs include clinical research, basic science, epidemiology, diagnostic tools, therapeutics development, biomarker studies, scholarships, and the CORE Network of Excellence for centers of clinical and research excellence.
Typical awards cluster in the six-figure range: the 25th percentile is $78,136, the median is $141,786, and the 75th percentile is $156,424. The recent record also includes smaller microgrants and larger research awards.
Yes. In the recent grants list, Children’s Hospital Corporation appears in both 2023 and 2025, and Carle Foundation Hospital also appears in both years. That indicates some recipients receive funding more than once.
The grantmaking is national in scope, and the recent grants sample is entirely U.S.-based. Recipient cities in the list include Cambridge, Stanford, Boston, Baltimore, Charleston, Urbana, University Park, and Beltsville.
Yes. The society’s active programs include periodic research funding opportunities and specific RFPs, including the 2024 Skin Biomarker Grant Round and the 2024 Pathophysiological and Therapeutic Markers RFP. It also lists an Awards section that accepts unsolicited applications.
2026
Source: IRS Form 990-PF, fiscal year 2026.
Current and upcoming funding from Ehlers-Danlos Society that your nonprofit may be able to apply for.
Who can apply: Available to researchers related to the Ehlers-Danlos syndromes; applicants must request support through the Society’s application form.
Deadline: No deadline stated; request process appears ongoing.
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Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| UNIVERSITY OF COLORADO | DENVER, CO | $847,953 | 2026 | RESEARCH GRANT |
| STANFORD UNIVERSITY | REDWOOD CITY, CA | $603,897 | 2026 | RESEARCH GRANTS |
| CHILDREN'S HOSPITAL CORPORATION | BOSTON, MA | $382,692 | 2026 | RESEARCH GRANT |
| CARLE FOUNDATION HOSPITAL | URBANA, IL | $316,727 | 2026 | RESEARCH GRANT |
| RHODE ISLAND HOSPITAL | PROVIDENCE, RI | $296,286 | 2026 | RESEARCH GRANT |
| INDIANA UNIVERSITY HEALTH FOUNDATION | INDIANAPOLIS, IN | $288,476 | 2026 | RESEARCH GRANT |
| THE PENNSYLVANIA STATE UNIVERSITY | UNIVERSITY PARK, PA | $60,113 | 2026 | RESEARCH GRANT |
| STANFORD UNIVERSITY | STANFORD, CA | $332,067 | 2025 | RESEARCH GRANT |
| CHILDREN'S HOSPITAL CORPORATION | BOSTON, MA | $133,573 | 2025 | RESEARCH GRANT |
| CARLE FOUNDATION HOSPITAL | URBANA, IL | $75,854 | 2025 | RESEARCH GRANT |
| MEDICAL UNIVERSITY OF SOUTH CAROLINA | CHARLESTON, SC | $105,000 | 2024 | RESEARCH GRANT |
| CARLE FOUNDATION HOSPITAL | URBANA, IL | $58,436 | 2024 | HEDGE ANALYSIS GRANT |
| THE BROAD INSTITUTE | CAMBRIDGE, MA | $766,545 | 2023 | RESEARCH GRANT |
| CHILDREN'S HOSPITAL CORPORATION | BOSTON, MA | $158,565 | 2023 | RESEARCH GRANT |
| MEDICAL UNIVERSITY OF SOUTH CAROLINA | CHARLESTON, SC | $150,000 | 2023 | RESEARCH GRANT |
| JOHN HOPKINS UNIVERSITY | BALTIMORE, MD | $150,000 | 2023 | RESEARCH GRANT |
| CARLE FOUNDATION HOSPITAL | URBANA, IL | $84,980 | 2023 | HEDGE ANALYSIS GRANT |
| THE PENNSYLVANIA STATE UNIVERSITY | UNIVERSITY PARK, PA | $30,000 | 2023 | BASCOM GRANT |
| REPROCELL USA INC | BELTSVILLE, MD | $12,275 | 2023 | RESEARCH GRANT |
UNIVERSITY OF COLORADO
$847,953RESEARCH GRANT
RESEARCH GRANT
THE PENNSYLVANIA STATE UNIVERSITY
$60,113RESEARCH GRANT
JOHN HOPKINS UNIVERSITY
$150,000RESEARCH GRANT
THE PENNSYLVANIA STATE UNIVERSITY
$30,000BASCOM GRANT
REPROCELL USA INC
$12,275RESEARCH GRANT
