About Eb Research Partnership
Largest global nonprofit dedicated to funding research to treat and cure Epidermolysis Bullosa (EB); accelerate development of therapies and a cure (goal: cure EB by 2030) and pioneer a venture-philanthropy model that can scale to other rare diseases.
Focus Areas
Epidermolysis Bullosa (EB)rare disease researchgene therapycell therapy / iPSstem cell researchclinical trialsdata platforms for clinical and genomic research
Who They Fund
people living with epidermolysis bullosa (EB)rare disease patients and their familiesmedical and scientific research community focused on EB
Funding Style
About Eb Research Partnership
Eb Research Partnership Inc centers its giving on Epidermolysis Bullosa research, with grants repeatedly aimed at finding a cure for EB. The largest award in the recent record went to Stanford University for $1,937,685 in 2024, followed by another Stanford grant of $1,680,779 in 2023 for the same purpose. That pattern shows a funder backing long-horizon biomedical work rather than isolated pilot projects. The foundation’s recent grants also include large awards to the University of Colorado, Northwestern University, the University of Chicago, and Cincinnati Children’s Hospital Medical Center, all with the same cure-oriented purpose text. Those grants span universities and pediatric medical centers, indicating support for both academic and clinical research environments. Its active programs reinforce that approach: EB Research Project Grants, EB Clinical Research Consortium grants, and EB iPS Cell Consortium funding all point toward translational research, collaborative infrastructure, and therapies that could move into commercialization. The organization’s latest 990 year on file is 2025, and its annual grants given total $12,675,803.
What Eb Research Partnership Funds
A defining part of the foundation’s work is disease-cure research for Epidermolysis Bullosa. It awarded $951,243 in 2025 to the University of Colorado for research to find a cure for EB, and $948,217 in 2025 to Northwestern University for the same purpose. Clinical and translational research also appears in its active consortium funding. The EB Clinical Research Consortium and EB iPS Cell Consortium are designed to foster collaboration among research institutions and accelerate development of therapies and research infrastructure for EB. The foundation also backs work at the intersection of research and product development. It gave $250,000 in 2025 to Eliksa Therapeutics and $200,000 in 2025 to Onconova Therapeutics Inc, both with the stated purpose of funding research to find a cure for EB. A separate 2025 grant of $46,340 to the University of Massachusetts Medical School extends that same research focus into another academic setting.
How Eb Research Partnership Gives
Typical grant size sits at a median of $169,209, with the 25th percentile at $26,060 and the 75th percentile at $375,518. The recent record includes both large university awards and smaller research grants, which suggests a spread from major project funding to more modest allocations. The foundation appears to support recipients over multiple years. Stanford University, the University of Colorado, Northwestern University, and the University of Southern California each show repeated awards across 2023 to 2025. Eb Research Partnership Inc uses a venture philanthropy model in its project-grant program, with one-year funding and potential annual renewal up to five years. Its project grants are also described as accepting unsolicited proposals.
Financial Snapshot
Annual Giving
$3.9M
Total Assets
$22.9M
Total Revenue
$5.5M
Total Expenses
$7.2M
Typical Grant Size
Most grants fall between $26K and $376K, with a median of $169K.
25th Percentile
$26K
Median
$169K
75th Percentile
$376K
Geographic Reach
National13 states funded
About 7% of grants go to recipients in PA.
Funding intensity
LowHigh
Headquarters
Leadership
MICHAEL HUND
Unlock Deep Analysis
Sign up for a free Kindora account to access AI-generated insights into this funder's giving patterns, decision-makers, and fit signals.
Get Started FreeSee Similar Funders
Free Kindora accounts unlock side-by-side comparisons with foundations that share this funder's focus areas and giving profile.
Get Started FreeExplore related grant guides
Want a Personalized Pitch for Eb Research Partnership?
Sign up free to see how well your nonprofit fits this funder, get an AI-generated pitch, and unlock similar foundations.
Free plan available
No contracts
Cancel anytime