About Children's Tumor Foundation
The Children's Tumor Foundation acts now so treatments exist when patients need them, with the goal of driving treatments and ending neurofibromatosis.
Focus Areas
Neurofibromatosis type 1 (NF1)NF2-related schwannomatosis (NF2-SWN)Schwannomatosis (SWN)Drug discoveryClinical trialsGene therapyBiomarkers and early detectionCognitive and neurological researchPsychosocial researchPreclinical modelsData science and multi-omicsPatient engagementHealthcare access and clinical care
About Children's Tumor Foundation
Children's Tumor Foundation concentrates on research and care for neurofibromatosis and schwannomatosis, using a portfolio that includes contract awards, early-career support, clinical research awards, drug discovery, and clinic network funding. Its recent grants show repeated support for major research institutions alongside specialty clinics, with several awards in the high hundreds of thousands of dollars. Massachusetts General Hospital received $449,795 in 2025 through a mix of contract award, YIA, DDI, CRA, and NF clinic network support, while Washington University in St. Louis received $437,707 in 2025 for contract award and YIA work. The foundation’s grantmaking also reaches into patient-care infrastructure: University of Arkansas for Medical Sciences received $449,610 in 2023 for NFCN and the adult NF clinic program, and Children's Hospital of Philadelphia received $279,188 in 2023 for OPG, DDI, and NF clinic network work. The pattern points to a funder that backs both research production and the clinical settings where NF and schwannomatosis care is delivered.
What Children's Tumor Foundation Funds
Clinical infrastructure is a core part of the portfolio. University of Arkansas for Medical Sciences received $234,442 in 2025 for NFCN support, while Indiana University received $172,978 in 2024 for contract award and NF clinic network work. The foundation also backs translational research at major academic centers: Sage Bionetworks received $328,754 in 2025 for a contract award, and Yale University received $161,688 in 2025 for a contract award. Early-career support is another clear theme. University of Pennsylvania received $132,468 in 2024 for a Young Investigator Award, and Cincinnati Children's Hospital Medical Center received $203,750 in 2024 for OPG and YIA. Drug discovery appears as a distinct line of support as well, including $284,744 in 2024 to Oregon Health and Science University for DDI.
How Children's Tumor Foundation Gives
Typical grants cluster around a median of $49,696, with the middle half running from $6,500 at the 25th percentile to $148,109 at the 75th percentile. At the top end, the recent grant list includes awards well above that range, often bundling several program elements into one grant. The foundation is a public charity and a regular funder, not a funder of individuals. The recent list also suggests recurring relationships: Massachusetts General Hospital, Washington University, Sage Bionetworks, and Children's Hospital of Philadelphia each appear in multiple years. Several listed opportunities accept unsolicited applications, including Clinical Research Award, Young Investigator Award, NF Data Utilization Award, Discovery Fund, Drug Discovery Initiative, NF1 Gene Therapy Awards, and the NF Clinic Network.
Financial Snapshot
Annual Giving
$4.2M
Total Assets
$30.7M
Total Revenue
$19.7M
Total Expenses
$19M
Typical Grant Size
Most grants fall between $7K and $148K, with a median of $50K.
25th Percentile
$7K
Median
$50K
75th Percentile
$148K
Geographic Reach
National28 states funded
About 5% of grants go to recipients in CA.
Funding intensity
LowHigh
Headquarters
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