Accelerate research, drug discovery, clinical trials, and patient care to bring treatments to people with neurofibromatosis (NF) and schwannomatosis and ultimately end NF.
Children's Tumor Foundation concentrates on research and care for neurofibromatosis and schwannomatosis, using a portfolio that includes contract awards, early-career support, clinical research awards, drug discovery, and clinic network funding. Its recent grants show repeated support for major research institutions alongside specialty clinics, with several awards in the high hundreds of thousands of dollars. Massachusetts General Hospital received $449,795 in 2025 through a mix of contract award, YIA, DDI, CRA, and NF clinic network support, while Washington University in St. Louis received $437,707 in 2025 for contract award and YIA work. The foundation’s grantmaking also reaches into patient-care infrastructure: University of Arkansas for Medical Sciences received $449,610 in 2023 for NFCN and the adult NF clinic program, and Children's Hospital of Philadelphia received $279,188 in 2023 for OPG, DDI, and NF clinic network work. The pattern points to a funder that backs both research production and the clinical settings where NF and schwannomatosis care is delivered.
Clinical infrastructure is a core part of the portfolio. University of Arkansas for Medical Sciences received $234,442 in 2025 for NFCN support, while Indiana University received $172,978 in 2024 for contract award and NF clinic network work. The foundation also backs translational research at major academic centers: Sage Bionetworks received $328,754 in 2025 for a contract award, and Yale University received $161,688 in 2025 for a contract award. Early-career support is another clear theme. University of Pennsylvania received $132,468 in 2024 for a Young Investigator Award, and Cincinnati Children's Hospital Medical Center received $203,750 in 2024 for OPG and YIA. Drug discovery appears as a distinct line of support as well, including $284,744 in 2024 to Oregon Health and Science University for DDI.
Typical grants cluster around a median of $49,696, with the middle half running from $6,500 at the 25th percentile to $148,109 at the 75th percentile. At the top end, the recent grant list includes awards well above that range, often bundling several program elements into one grant. The foundation is a public charity and a regular funder, not a funder of individuals. The recent list also suggests recurring relationships: Massachusetts General Hospital, Washington University, Sage Bionetworks, and Children's Hospital of Philadelphia each appear in multiple years. Several listed opportunities accept unsolicited applications, including Clinical Research Award, Young Investigator Award, NF Data Utilization Award, Discovery Fund, Drug Discovery Initiative, NF1 Gene Therapy Awards, and the NF Clinic Network.
$4.2M
$30.7M
$19.7M
$19M
Most grants fall between $7K and $148K, with a median of $50K.
25th Percentile
$7K
Median
$50K
75th Percentile
$148K
About 5% of grants go to recipients in CA.
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Giving is national, and every recent grant in the dataset went to a U.S. recipient. The strongest concentration by state is Florida, which accounts for the largest share of grant count, even though the foundation is headquartered in New York, NY. Recent recipients appear in Boston, St. Louis, Philadelphia, Indianapolis, Seattle, and Little Rock, showing a spread across major research and clinic hubs. The recent grants list also includes Coral Gables and Gainesville in Florida, which helps explain that state-level concentration.
It supports neurofibromatosis and schwannomatosis work across research and care delivery. The listed focus areas include NF1, NF2-related schwannomatosis, schwannomatosis, rare disease research, drug discovery and development, clinical trials, patient registries and data sharing, gene therapy, and adult NF clinic capacity building.
Yes for several named opportunities. The Clinical Research Award, Young Investigator Award, NF Data Utilization Award, Discovery Fund, Drug Discovery Initiative, NF1 Gene Therapy Awards, Special Call on Pain in NF and SWN, and NF Clinic Network all accept unsolicited applications. The Contract Award does not.
The grant-size distribution is centered at a median of $49,696. The 25th percentile is $6,500 and the 75th percentile is $148,109, indicating a wide range from smaller awards to larger project or network grants.
Its grantmaking is national, with all recent grants going to U.S. recipients. By state, Florida receives the most grants, while New York recipients account for 6% of grants.
Yes. Several recipients appear across multiple years in the recent grants list, including Massachusetts General Hospital, Washington University, Sage Bionetworks, Children's Hospital of Philadelphia, National Cancer Institute, Cincinnati Children's Hospital Medical Center, and Indiana University.
2025
Source: IRS Form 990-PF, fiscal year 2025.
Current and upcoming funding from Children'S Tumor Foundation that your nonprofit may be able to apply for.
Who can apply: Any NF care provider/clinic may apply for affiliate clinic status. Applications evaluated by CTF Clinical Care Advisory Board based on NF expertise, patient volume, multidisciplinary care, research support, and community involvement.
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Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| MASSACHUSETTS GENERAL HOSPITAL | BOSTON, MA | $449,795 | 2025 | RESEARCH - CONTRACT AWARD, YIA, DDI, CRA AND NF CLINIC NETWORK |
| WASHINGTON UNIVERSITY | ST LOUIS, MO | $437,707 | 2025 | RESEARCH - CONTRACT AWARD AND YIA |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA | LOS ANGELES, CA | $336,410 | 2025 | RESEARCH - CONTRACT AWARD, YIA AND NFCN |
| SAGE BIONETWORKS | SEATTLE, WA | $328,754 | 2025 | RESEARCH - CONTRACT AWARD |
| NATIONAL CANCER INSTITUTE | PITTSBURG, PA | $242,758 | 2025 | RESEARCH - CONTRACT AWARD AND CRA |
| UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES | LITTLE ROCK, AR | $234,442 | 2025 | RESEARCH - NFCN |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER | CINCINNATI, OH | $230,224 | 2025 | RESEARCH - OPG, CONTRACT AWARD, NF CLINIC NETWORK, YIA AND CRA |
| CHILDREN'S HOSPITAL OF PHILADELPHIA | PHILADELPHIA, PA | $228,194 | 2025 | RESEARCH - OPG |
| INDIANA UNIVERSITY | INDIANAPOLIS, IN | $189,658 | 2025 | RESEARCH - YIA, CONTRACT AWARD AND NF CLINIC NETWORK |
| UNIVERSITY OF MIAMI | CORAL GABLES, FL | $166,667 | 2025 | RESEARCH - CONTRACT AWARD |
| YALE UNIVERSITY | NEW HAVEN, CT | $161,688 | 2025 | RESEARCH - CONTRACT AWARD |
| OREGON HEALTH AND SCIENCE UNIVERSITY | PORTLAND, OR | $92,372 | 2025 | RESEARCH - CONTRACT AWARD AND DDI |
| JOHNS HOPKINS UNIVERSITY | BALTIMORE, MD | $82,600 | 2025 | RESEARCH - YIA, DDI AND NF CLINIC NETWORK |
| CHILDREN'S NATIONAL HOSPITAL | WASHINGTON, DC | $79,708 | 2025 | RESEARCH - NF CLINIC NETWORK, CRA, DDI AND OPG |
| CHILDREN'S NATIONAL MEDICAL CENTER | WASHINGTON, DC | $79,708 | 2025 | RESEARCH - OPG, DDI, CRA AND NF CLINIC NETWORK |
| FLORIDA STATE UNIVERSITY RESEARCH FOUNDATION INC | TALLAHASSEE, FL | $74,970 | 2025 | RESEARCH - CRA |
| REGENTS OF THE UNIVERSITY OF MINNESOTA | BAGLEY, MN | $74,328 | 2025 | RESEARCH - CRA AND NF CLINIC NETWORK |
| UNIVERSITY OF PENNSYLVANIA | PHILADELPHIA, PA | $66,234 | 2025 | RESEARCH - YIA |
| NYPH - WEILL CORNELL MEDICAL COLLEGE | NEW YORK, NY | $59,186 | 2025 | RESEARCH - YIA |
| MEDICAL COLLEGE OF WISCONSIN | MENOMONEE, WI | $50,000 | 2025 | RESEARCH - DDI |
| UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER | HOUSTON, TX | $49,044 | 2025 | RESEARCH - NF CLINIC NETWORK AND DDI |
| UNIVERSITY OF TEXAS AT AUSTIN | AUSTIN, TX | $47,892 | 2025 | RESEARCH - CONTRACT AWARDS |
| BOSTON CHILDREN'S HOSPITAL | BOSTON, MA | $47,215 | 2025 | RESEARCH - OPG, CRA AND NF CLINIC NETWORK |
| UNIVERSITY OF IOWA | IOWA CITY, IA | $42,184 | 2025 | RESEARCH - YIA AND NF CLINIC NETWORK |
| UNIVERSITY OF FLORIDA GAINESVILLE | GAINVILLE, FL | $40,087 | 2025 | RESEARCH - NF CLINIC NETWORK AND CRA |
| STANFORD UNIVERSITY | STANFORD, CA | $39,440 | 2025 | RESEARCH - NF CLINIC NETWORK |
| UNIVERSITY OF CENTRAL FLORIDA | ORLANDO, FL | $37,818 | 2025 | RESEARCH - YIA |
| MAYO CLINIC RESEARCH FINANCE | ROCHESTER, MN | $33,387 | 2025 | RESEARCH - CONTRACT AWARD AND NF CLINIC NETWORK |
| ALLIANT INTERNATIONAL UNIVERSITY | SAN DIEGO, CA | $22,543 | 2025 | RESEARCH - CONTRACT AWARD |
| VAN ANDEL RESEARCH INSTITUTE | GRAND RAPIDS, MI | $22,250 | 2025 | RESEARCH - YIA |
| PRECISION FOR MEDICINE INC | FREDERICK, MD | $19,881 | 2025 | RESEARCH - OPG |
| LOUISIANA STATE UNIVERSITY AND A&M COLLEGE | BATON ROUGE, LA | $17,915 | 2025 | RESEARCH - YIA |
| ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO | CHICAGO, IL | $12,480 | 2025 | RESEARCH - NF CLINIC NETWORK AND OPG |
| UNIVERSITY FOUNDATION AT SACRAMENTO STATE | SACRAMENTO, CA | $10,000 | 2025 | RESEARCH - NF CLINIC NETWORK |
| ST JOSEPH'S REGIONAL MEDICAL CENTER | LEWISTON, ID | $9,850 | 2025 | RESEARCH - NF CLINIC NETWORK |
| VALLEY CHILDREN'S HEALTHCARE | MADERA, CA | $8,000 | 2025 | RESEARCH - NF CLINIC NETWORK |
| CHILDREN'S HOSPITAL-NEW ORLEANS | NEW ORLEANS, LA | $8,000 | 2025 | RESEARCH - NF CLINIC NETWORK |
| UNIVERSITY OF UTAH | SALT LAKE CITY, UT | $8,000 | 2025 | RESEARCH - NF CLINIC NETWORK |
| DELL CHILDREN'S MEDICAL CENTER OF CENTRAL TEXAS | AUSTIN, TX | $6,800 | 2025 | RESEARCH - NF CLINIC NETWORK |
| CLEVELAND CLINIC FOUNDATION | INDEPENDENCE, OH | $6,500 | 2025 | RESEARCH - NF CLINIC NETWORK |
| PHOENIX CHILDREN'S HOSPITAL | PHOENIX, AZ | $6,500 | 2025 | RESEARCH - NF CLINIC NETWORK |
| CHILDREN'S HEALTHCARE OF ATLANTA | ATLANTA, GA | $6,500 | 2025 | RESEARCH - NF CLINIC NETWORK |
| EMORY UNIVERSITY SCHOOL OF MEDICINE | ATLANTA, GA | $6,500 | 2025 | RESEARCH - NF CLINIC NETWORK |
| ADVENTHEALTH FOR CHILDREN | MAITLAND, FL | $6,500 | 2025 | RESEARCH - NF CLINIC NETWORK |
| BENIOFF CHILDREN'S HOSPITAL | OAKLAND, CA | $6,500 | 2025 | RESEARCH - NF CLINIC NETWORK |
| UNIVERSITY OF CALIFORNIA SAN FRANCISCO | SAN FRANCISCO, CA | $6,500 | 2025 | RESEARCH - NF CLINIC NETWORK |
| COLUMBIA UNIVERSITY IRVING MEDICAL CENTER | NEW YORK, NY | $6,500 | 2025 | RESEARCH - NF CLINIC NETWORK |
| SEATTLE CHILDREN'S HOSPITAL FOUNDATION | SEATTLE, WA | $5,200 | 2025 | RESEARCH - NF CLINIC NETWORK |
| CHILDREN'S HOSPITAL COLORADO | AURORA, CO | $5,100 | 2025 | RESEARCH - NF CLINIC NETWORK |
| UT SOUTHWESTERN MEDICAL CENTER | DALLAS, TX | $5,095 | 2025 | RESEARCH - YIA & NF CLINIC NETWORK |
MASSACHUSETTS GENERAL HOSPITAL
$449,795RESEARCH - CONTRACT AWARD, YIA, DDI, CRA AND NF CLINIC NETWORK
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
$336,410RESEARCH - CONTRACT AWARD, YIA AND NFCN
NATIONAL CANCER INSTITUTE
$242,758RESEARCH - CONTRACT AWARD AND CRA
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
RESEARCH - NFCN
RESEARCH - OPG, CONTRACT AWARD, NF CLINIC NETWORK, YIA AND CRA
OREGON HEALTH AND SCIENCE UNIVERSITY
$92,372RESEARCH - CONTRACT AWARD AND DDI
CHILDREN'S NATIONAL MEDICAL CENTER
$79,708RESEARCH - OPG, DDI, CRA AND NF CLINIC NETWORK
REGENTS OF THE UNIVERSITY OF MINNESOTA
$74,328RESEARCH - CRA AND NF CLINIC NETWORK
NYPH - WEILL CORNELL MEDICAL COLLEGE
$59,186RESEARCH - YIA
MEDICAL COLLEGE OF WISCONSIN
$50,000RESEARCH - DDI
UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER
$49,044RESEARCH - NF CLINIC NETWORK AND DDI
UNIVERSITY OF TEXAS AT AUSTIN
$47,892RESEARCH - CONTRACT AWARDS
UNIVERSITY OF IOWA
$42,184RESEARCH - YIA AND NF CLINIC NETWORK
UNIVERSITY OF FLORIDA GAINESVILLE
$40,087RESEARCH - NF CLINIC NETWORK AND CRA
UNIVERSITY OF CENTRAL FLORIDA
$37,818RESEARCH - YIA
ALLIANT INTERNATIONAL UNIVERSITY
$22,543RESEARCH - CONTRACT AWARD
PRECISION FOR MEDICINE INC
$19,881RESEARCH - OPG
LOUISIANA STATE UNIVERSITY AND A&M COLLEGE
$17,915RESEARCH - YIA
RESEARCH - NF CLINIC NETWORK AND OPG
ST JOSEPH'S REGIONAL MEDICAL CENTER
$9,850RESEARCH - NF CLINIC NETWORK
UNIVERSITY OF UTAH
$8,000RESEARCH - NF CLINIC NETWORK
CHILDREN'S HEALTHCARE OF ATLANTA
$6,500RESEARCH - NF CLINIC NETWORK
ADVENTHEALTH FOR CHILDREN
$6,500RESEARCH - NF CLINIC NETWORK
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
$6,500RESEARCH - NF CLINIC NETWORK
SEATTLE CHILDREN'S HOSPITAL FOUNDATION
$5,200RESEARCH - NF CLINIC NETWORK
UT SOUTHWESTERN MEDICAL CENTER
$5,095RESEARCH - YIA & NF CLINIC NETWORK
