The Association for Frontotemporal Degeneration
KNG OF PRUSSA, PA · Medical Research
Built from IRS filings (latest Form 990: tax year 2023). The Association for Frontotemporal Degeneration has not reviewed or approved this page. Kindora is not affiliated with it.
Mission
PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES (CONT'D IN SCH O)AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.
Financials (IRS Form 990)
Source: IRS Form 990, tax year 2023.
Who funds The Association for Frontotemporal Degeneration
$17.1M in foundation grants on record from 125 funders — matched from IRS 990 grant line items. Some matches may be approximate.
| Funder | Total given | Grants |
|---|---|---|
| National Philanthropic Trust | $4.1M | 4 |
| David Geffen Foundation | $3M | 3 |
| Arizona Community Foundation | $2.3M | 3 |
| Fidelity Investments Charitable Gift Fund | $1.1M | 4 |
| Fidelity Non-Profit Management Foundation | $800K | 1 |
| Open Hand Foundation | $600K | 1 |
| Amyotrophic Lateral Sclerosis Assn | $536K | 3 |
| George L Ohrstrom Foundation | $531K | 3 |
| Rockler Jackson Family Foundation | $500K | 1 |
| Sg Schimenti Foundation | $500K | 1 |
Leadership
SUSAN L-J DICKINSON — CHIEF EXECUTIVE OFFICER (Principal officer)
Names of officers and trustees come from the organization's public filings and leave this page when a later filing drops them. If you are named here and object, write to privacy@kindora.co.