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    5. Foundation for Peripheral Neuropathy
    Foundation for Peripheral Neuropathy logo

    Foundation for Peripheral Neuropathy

    ActiveMedical Research
    Buffalo Grove, ILWebsite8478839951

    About Foundation for Peripheral Neuropathy

    We strive to improve the lives of those affected by peripheral neuropathy through awareness, education, advocacy, and research to advance the discovery of new therapies and cures.

    Focus Areas

    peripheral neuropathy researchclinical trialspatient educationbiobanking and registriesresearch training/scholarships

    Who They Fund

    patients with peripheral neuropathypatients with Anti-MAG and IgM-associated peripheral neuropathyclinical trial participantsresearch investigators (including early-career scientists)clinicians treating neuropathy

    Funding Style

    translational research funding

    About Foundation for Peripheral Neuropathy

    A defining feature of The Foundation for Peripheral Neuropathy is its support for clinical research training alongside direct research awards in peripheral neuropathy. One of its active programs is the Clinical Research Training Scholarship, a $150,000 award delivered over two years to early-career investigators working in the field. That emphasis on building the research pipeline sits alongside grants aimed at therapies, cures, and translational work for people affected by peripheral neuropathy. Recent awards show a consistent commitment to major academic medical centers. Johns Hopkins University received the largest recent grant at $73,825 in 2024 and another $62,400 in 2023, indicating sustained support across years. The foundation also funded the University of Utah in both 2023 and 2024, and Mt Sinai Medical Center received grants in both years as well. These repeated awards point to ongoing relationships rather than isolated gifts. The foundation’s own summary centers on awareness, education, advocacy, and research to advance new therapies and cures. Its grantmaking reflects that mission through support for research infrastructure, clinical trials, and investigator development, especially in work tied to peripheral neuropathy.

    What Foundation for Peripheral Neuropathy Funds

    The foundation supports several connected strands of peripheral neuropathy work. In research infrastructure, it awarded $73,825 to Johns Hopkins University in 2024 for Database work, and its program materials also describe access to Peripheral Neuropathy Research Registry biospecimens and data for qualified researchers. Clinical research is another clear theme. Washington University St Louis received $12,000 in 2024 and $7,600 in 2023, both listed as Database grants, while the foundation’s program language includes clinical trials and research activities that may identify therapies for peripheral neuropathy. The foundation also backs specialized and translational study areas. University of Utah received $20,400 in 2023 and $17,400 in 2024, and the foundation’s taxonomy includes biomarker discovery, genetics and genomics, neuropathic pain mechanisms, and immune-mediated neuropathies such as Anti-MAG and IgM-associated peripheral neuropathy.

    How Foundation for Peripheral Neuropathy Gives

    Typical grant sizes cluster in a fairly tight band: the p25 is $8,162, the median is $13,500, and the p75 is $19,650. The recent grants list also shows a much larger research award at $73,825, alongside several awards near the median, suggesting a mix of standard project grants and larger multi-year or infrastructure-linked support. The pattern is not one-off. Johns Hopkins University, the University of Utah, Mt Sinai Medical Center, and Washington University St Louis each appear more than once across 2023 and 2024. The foundation is not an individual-giving funder and does not make program-related investments. Its active opportunities include unsolicited research grants and a Clinical Research Training Scholarship offered with the American Brain Foundation and the American Academy of Neurology.

    Financial Snapshot

    Annual Giving

    $264K

    Total Assets

    $3.5M

    Total Revenue

    $2.6M

    Total Expenses

    $1.4M

    Typical Grant Size

    Most grants fall between $8K and $20K, with a median of $14K.

    25th Percentile

    $8K

    Median

    $14K

    75th Percentile

    $20K

    Geographic Reach

    National6 states funded

    About 0% of grants go to recipients in MA.

    Funding intensity
    Low
    High
    Headquarters

    Leadership

    Lindsay Colbert

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    Privacy PolicyTerms of ServiceSystem Status
    EIN (Tax ID): 26-1195248Latest Form 990: 2026Total assets: $3.5M4 filings on recordFind their full 990 filing →
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    collaborative network building
    research infrastructure support (registry/biobank)
    clinical trial support
    early-career investigator training and fellowships

    Topics

    peripheral neuropathy researchbiobanking and biospecimen curationbiomarker discovery and validationimmune-mediated neuropathies (Anti-MAG, IgM-associated PN)genetics and genomics of neuropathyneuropathic pain mechanisms and treatmentsclinical trials for neuropathy therapeutics

    Where Foundation for Peripheral Neuropathy Makes Grants

    Grantmaking is national, and every recent grant in the sample went to U.S. recipients. The most frequent state in the recent grants is Missouri, with Washington University St Louis appearing in St. Louis, and the top state by grant count overall is MO. Recent awards also reached Baltimore, Salt Lake City, New York City, Ann Arbor, and Kansas City, showing a spread across major research centers. No recent grants in the sample went to recipients in Illinois, despite the headquarters being in Buffalo Grove, IL.

    Frequently Asked Questions About Foundation for Peripheral Neuropathy

    What kind of work does The Foundation for Peripheral Neuropathy support?

    It supports peripheral neuropathy research, clinical trials, patient education, biobanking and registries, and research training or scholarships. Its stated mission is to improve the lives of people affected by peripheral neuropathy through awareness, education, advocacy, and research.

    Does the foundation support early-career researchers?

    Yes. A core program is the Clinical Research Training Scholarship, which provides $150,000 in research support over two years to early-career investigators in peripheral neuropathy.

    How large are the foundation’s typical grants?

    Typical grant size centers around a median of $13,500, with a p25 of $8,162 and a p75 of $19,650. The recent grants also include a larger award of $73,825, showing some variation by project type.

    Does the foundation accept unsolicited requests?

    Yes, at least some of its active opportunities accept unsolicited submissions. The research funding guidelines list Letters of Intent as an initial submission step, and the FPN Research Grants and the Clinical Research Training Scholarship are marked as accepting unsolicited applications in the program data.

    Where does the foundation give most often?

    Its recent grants are national, but Missouri appears most often in the sample. Washington University St Louis received grants in both 2023 and 2024, and all recent grants listed went to U.S. recipients.

    Latest 990 Filing

    2026

    Source: IRS Form 990-PF, fiscal year 2026.

    Open Grant Opportunities

    Current and upcoming funding from Foundation for Peripheral Neuropathy that your nonprofit may be able to apply for.

    Open nowRolling / open intake

    Access to Peripheral Neuropathy Research Registry (PNRR) biospecimens & data

    Biomarker discoveryGenetics and genomic studiesClinical and translational research in peripheral neuropathy+1 more

    Who can apply: Researchers interested in using PNRR biospecimens or data should submit the PNRR access application. Questions can be directed to info@tffpn.org. Inclusion criteria for patient samples are defined by the registry (e.g., diagnosis of DPN, CIPN, idiopathic PN, HIV/AIDS PN); use of samples requires compliance with registry governance and confidentiality safeguards.

    Deadline: No specific deadlines listed; requests accepted via application form (contact for details).

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    Deadlines and eligibility are summarized from public sources and may change — always confirm the details on the funder's official application page before applying.

    Recent Grants

    Most recent grants reported to the IRS.

    RecipientLocationAmountYearPurpose
    American Brain FoundationMinneapolis, MN$225,0002025CRTS in Peripheral Neuropathy
    Johns Hopkins UniversityBaltimore, MA$24,8002025PNRR Enrollments
    Washington University St LouisSt Louis, MO$14,4002025PNRR Enrollments
    Johns Hopkins UniversityBaltimore, MA$73,8252024Database
    University of UtahSalt Lake City, UT$17,4002024Database
    Washington University St LouisSt Louis, MO$12,0002024Database
    University of MichiganAnn Arbor, MI$8,6502024Database
    Mt Sinai Medical CenterNew York, NY$8,0002024Database
    Johns Hopkins UniversityBaltimore, MA$62,4002023Database
    University of UtahSalt Lake City, UT$20,4002023Database
    Mt Sinai Medical CenterNew York, NY$15,0002023Database
    Washington University St LouisSt Louis, MO$7,6002023Database
    University of KansasKansas City, KS$7,4002023Database

    American Brain Foundation

    $225,000
    Minneapolis, MN2025

    CRTS in Peripheral Neuropathy

    Johns Hopkins University

    $24,800
    Baltimore, MA2025

    PNRR Enrollments

    Washington University St Louis

    $14,400
    St Louis, MO2025

    PNRR Enrollments

    Johns Hopkins University

    $73,825
    Baltimore, MA2024

    Database

    University of Utah

    $17,400
    Salt Lake City, UT2024

    Database

    Washington University St Louis

    $12,000
    St Louis, MO2024

    Database

    University of Michigan

    $8,650
    Ann Arbor, MI2024

    Database

    Mt Sinai Medical Center

    $8,000
    New York, NY2024

    Database

    Johns Hopkins University

    $62,400
    Baltimore, MA2023

    Database

    University of Utah

    $20,400
    Salt Lake City, UT2023

    Database

    Mt Sinai Medical Center

    $15,000
    New York, NY2023

    Database

    Washington University St Louis

    $7,600
    St Louis, MO2023

    Database

    University of Kansas

    $7,400
    Kansas City, KS2023

    Database