About Indiana Hemophilia & Thrombosis Center
The Indiana Hemophilia & Thrombosis Center concentrates its philanthropy on bleeding disorders — funding clinical care, patient support, research and networks that improve access to treatment for people with hemophilia and related conditions. Grants are largely directed to specialized treatment providers, state and regional hemophilia chapters, and national coordination/advocacy organizations, with occasional local community investments in Indianapolis. The foundation supports both service delivery (care clinics, patient assistance) and clinical/research partnerships with universities and blood centers.
Focus Areas
Comprehensive hemophilia treatment and community health clinic support in IndianaState/regional hemophilia chapters and patient support programs (e.g., Hemophilia of Indiana, Hemophilia Foundation of Michigan)National networks, advocacy and data infrastructure for bleeding disorders (e.g., ATHN, World Federation of Hemophilia USA)Patient access and financial assistance programs for bleeding disorder therapiesClinical research and partnerships with university medical centers and blood centers
Giving Approach
Concentrated, mission-focused giving: a small number of large, repeat grants drive most of the dollars (several multi-hundred-thousand and one multi-million gift), with frequent repeat funding to core clinical providers and hemophilia chapters alongside targeted grants to national networks and university research partners.
About Indiana Hemophilia & Thrombosis Center
Indiana Hemophilia & Thrombosis Center Inc’s largest recent grants go to a community health clinic in Topeka, Indiana, with awards of $1,501,367 in 2025 and $1,473,247 in 2024. That scale points to a funder that backs direct care infrastructure, not just advocacy. Across its recent giving, the foundation supports hemophilia and thrombosis care, patient assistance, research partnerships, and statewide and national coordination for bleeding disorders. The grant record shows a steady mix of clinical providers, patient-support groups, and data or network organizations. Hemophilia of Indiana in Indianapolis received multiple awards, including $598,016 in 2025 and $163,868 in 2024, while Hemophilia Foundation of Michigan in Ypsilanti received $693,392 in 2025 and $96,520 in 2024. The foundation also funds groups that connect patients to treatment access and community support, along with blood centers and medical research partners. Its giving is centered on bleeding disorders and related conditions, with occasional local support in Indianapolis through organizations such as The Martin Center and the Children’s Museum of Indianapolis.
What Indiana Hemophilia & Thrombosis Center Funds
One major area is comprehensive hemophilia treatment and clinic support. Indiana Hemophilia & Thrombosis Center Inc gave $1,501,367 in 2025 to Community Health Clinic in Topeka, Indiana for clinic support, and it also awarded $598,016 in 2025 to Hemophilia of Indiana in Indianapolis. A second theme is patient support and access to therapy. The foundation gave $155,000 in 2025 to Accessia Health and $50,000 in 2023 to Patient Services Inc, both organizations tied to financial assistance for people with bleeding disorders. It also invests in the broader bleeding-disorders network. Grants of $350,438 in 2025 and $100,000 in 2025 to American Thrombosis & Hemostasis Network and World Federation of Hemophilia USA show support for data infrastructure and national coordination. Clinical and research partnerships appear as well, including $122,315 in 2023 to Regents of University of Michigan and $93,881 in 2023 to Versiti Blood Center of Wisconsin.
How Indiana Hemophilia & Thrombosis Center Gives
Typical grant sizes cluster in a mid-six-figure to low-six-figure range, with a p25 of $52,500, median of $86,256, and p75 of $116,736. The recent record includes both very large clinic awards and a broad middle band of operating support and program grants. The pattern is recurring rather than one-off: several recipients appear across multiple years, including Community Health Clinic, Hemophilia of Indiana, Hemophilia Foundation of Michigan, Accessia Health, World Federation of Hemophilia USA, and The Martin Center. The foundation does not make program-related investments and does not fund individuals. The grant record reflects institutional giving, mostly to established nonprofits and medical partners.
Financial Snapshot
Annual Giving
$3.6M
Total Assets
$74M
Total Revenue
$39.4M
Total Expenses
$45.2M
Typical Grant Size
Most grants fall between $53K and $117K, with a median of $86K.
25th Percentile
$53K
Median
$86K
75th Percentile
$117K
Geographic Reach
Regional6 states funded
Funding intensity
LowHigh
Headquarters
Leadership
AMY D SHAPIRO MD
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