Our mission is to improve the lives of people affected by Fanconi anemia and associated cancers worldwide by funding exceptional research and empowering our community.
The Fanconi Cancer Foundation centers its grantmaking on Fanconi anemia and associated cancers, with a program mix that links research, clinical coordination, and patient support. Its recent awards show sustained support for large cancer-research collaborations, including repeated grants to Stand Up To Cancer and the National Cancer Institute. Those awards sit alongside funding for university-based work in genomics, translational science, and disease-specific infrastructure. The foundation backs both investigator-led projects and multi-institution initiatives. Recent grants include support for Stanford University, the American Association for Cancer Research, Columbia University, and the Broad Institute, suggesting a strong emphasis on research networks and institutions that can move findings toward clinical use. Its stated mission also includes empowering the Fanconi anemia community, and its program list extends beyond laboratory research to consortium-based care pathways, screening, and data-sharing systems. That combination makes the foundation distinct: it is not only financing scientific studies, but also building the research and care structures around a rare disease community. The result is a portfolio that connects basic biology, cancer prevention, and patient-facing support around Fanconi anemia worldwide.
In cancer research, the foundation gave $375,000 to Stand Up To Cancer for collaborative work tied to Fanconi anemia-associated cancer research. It also supported the National Cancer Institute with $369,154, reinforcing a strong interest in translational and clinical research capacity. For academic research, it awarded $265,834 to Stanford University for work connected to Fanconi anemia science, and $105,000 to the Broad Institute Inc. These grants align with the foundation’s focus on gene therapy, gene editing, and preclinical models. The foundation also funds consortium and education infrastructure. It gave $164,000 to the American Association for Cancer Research, supporting the kind of scientific convening and knowledge-sharing that fits its collaborative model. In addition, grants to Columbia University and the University of Minnesota show support for institutions involved in broader Fanconi anemia research and clinical work.
$3.5M
$6.4M
$4.3M
$5.5M
Most grants fall between $53K and $124K, with a median of $63K.
25th Percentile
$53K
Median
$63K
75th Percentile
$124K
About 12% of grants go to recipients in CA.
MARK QUINLAN
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Typical grant size falls in a mid-six-figure band: the 25th percentile is $52,660, the median is $62,500, and the 75th percentile is $124,030. At the same time, the recent-grants list includes several much larger awards, which indicates a mix of program-scale grants and smaller project support. The foundation is a Regular Funder, not a DAF-based vehicle or an entity making program-related investments. Its recent grant record also shows repeat awards to the same institutions across multiple years, which points to recurring relationships rather than one-off gifts. Some of its programs are open to unsolicited proposals, including the Discovery Boost Grant and FARF Tank; others are invitation-based or consortium-linked.
The foundation gives nationally, and every recent grant in the dataset went to a U.S. recipient. New York appears most often as the top state by grant count, while Oregon accounts for 13% of grants, reflecting a smaller share of awards in the HQ state. Recent recipient cities include Los Angeles, Bethesda, Palo Alto, Minneapolis, Seattle, Boston, San Francisco, and New York City. The pattern suggests a national research footprint centered on major cancer and academic institutions rather than a single region.
Its active programs include general research grants, consortium-based clinical and research support, translational Discovery Boost grants, multi-institution collaborative team grants, investigator-initiated research, an award for adults with Fanconi anemia, and support for an international FA data commons.
It funds both. The program list includes patient support for adults with Fanconi anemia, patient and family education and resource development, psychosocial support through the consortium, and grants tied to registries and data infrastructure alongside research funding.
The typical grant size is $52,660 at the 25th percentile, $62,500 at the median, and $124,030 at the 75th percentile. Recent awards also include larger grants, such as $375,000 and $369,154, showing a wide range across programs.
Yes. The Discovery Boost Grant accepts unsolicited applications, and FARF Tank also accepts unsolicited submissions. Several other active programs are listed as not accepting unsolicited proposals and are tied to consortium or targeted funding structures.
The foundation supports Fanconi anemia basic and translational research, FA-associated cancer prevention and early detection, gene therapy and gene editing, preclinical models, clinical trials, clinical care standards, patient registry development, and patient and family education and advocacy.
2025
Source: IRS Form 990-PF, fiscal year 2025.
Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| STAND UP TO CANCER | LOS ANGELES, CA | $375,000 | 2025 | — |
| STAND UP TO CANCER | LOS ANGELES, CA | $375,000 | 2025 | — |
| NATIONAL CANCER INSTITUTE | BETHESDA, MD | $369,154 | 2025 | — |
| NATIONAL CANCER INSTITUTE | BETHESDA, MD | $369,154 | 2025 | — |
| STANFORD UNIVERSITY | PALO ALTO, CA | $265,834 | 2025 | — |
| STANFORD UNIVERSITY | PALO ALTO, CA | $229,461 | 2025 | — |
| AMERICAN ASSOCIATION FOR CANCER RESEARCH (AACR) | PHILADELPHIA, PA | $164,000 | 2025 | — |
| REGENTS OF THE UNIVERSITY OF MINNESOTA | MINNEAPOLIS, MN | $120,000 | 2025 | — |
| THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK | NEW YORK, NY | $117,501 | 2025 | — |
| UNIVERSITY OF CHICAGO | CHICAGO, IL | $105,320 | 2025 | — |
| FRED HUTCHINSON CANCER RESEARCH CENTER | SEATTLE, WA | $105,000 | 2025 | — |
| THE BROAD INSTITUTE INC | CAMBRIDGE, MA | $105,000 | 2025 | — |
| ALPHA OMEGA ALPHA HONOR MEDICAL SOCIETY OREGON UNIVERSITY | PORTLAND, OR | $100,000 | 2025 | — |
| THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK | NEW YORK, NY | $78,334 | 2025 | — |
| THE ROCKEFELLER UNIVERSITY | NEW YORK, NY | $64,492 | 2025 | — |
| THE ROCKEFELLER UNIVERSITY | NEW YORK, NY | $64,492 | 2025 | — |
| BOSTON CHILDREN'S HOSPITAL | BOSTON, MA | $62,500 | 2025 | — |
| YALE UNIVERSITY (BURTNESS) | NEW HAVEN, CT | $62,500 | 2025 | — |
| GEORGETOWN UNIVERSITY (KUPFER) | WASHINGTON, DC | $62,500 | 2025 | — |
| UNIVERSITY OF WASHINGTON | SEATTLE, WA | $62,500 | 2025 | — |
| UNIVERSITY OF WASHINGTON | SEATTLE, WA | $62,500 | 2025 | — |
| UNIVERSITY OF CHICAGO SELF INSURANCE TRUST | CHICAGO, IL | $52,660 | 2025 | — |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO | SAN FRANCISCO, CA | $50,000 | 2025 | — |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA | SAN FRANCISCO, CA | $50,000 | 2025 | — |
| OREGON STATE UNIVERSITY | PORTLAND, OR | $49,248 | 2025 | — |
| OREGON STATE UNIVERSITY | PORTLAND, OR | $24,624 | 2025 | — |
| STAND UP TO CANCER | LOS ANGELES, CA | $375,000 | 2024 | — |
| NATIONAL CANCER INSTITUTE | BETHESDA, MD | $369,154 | 2024 | — |
| STANFORD UNIVERSITY | PALO ALTO, CA | $265,834 | 2024 | — |
| ALPHA OMEGA ALPHA HONOR MEDICAL SOCIETY OREGON UNIVERSITY | PORTLAND, OR | $100,000 | 2024 | — |
| THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK | NEW YORK, NY | $78,334 | 2024 | — |
| THE ROCKEFELLER UNIVERSITY | NEW YORK, NY | $64,492 | 2024 | — |
| UNIVERSITY OF WASHINGTON | SEATTLE, WA | $62,500 | 2024 | — |
| BOSTON CHILDREN'S HOSPITAL | BOSTON, MA | $62,500 | 2024 | — |
| UNIVERSITY OF CHICAGO SELF INSURANCE TRUST | CHICAGO, IL | $52,660 | 2024 | — |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO | SAN FRANCISCO, CA | $50,000 | 2024 | — |
| OREGON STATE UNIVERSITY | PORTLAND, OR | $24,624 | 2024 | — |
| Stand Up To Cancer | Los Angeles, CA | $375,000 | 2023 | — |
| Stand Up To Cancer | Los Angeles, CA | $375,000 | 2023 | — |
| National Cancer Institute | Bethesda, MD | $184,577 | 2023 | — |
| University of Minnesota | Minneapolis, MN | $160,000 | 2023 | — |
| University of Washington | Seattle, WA | $144,052 | 2023 | — |
| Boston Children's Hospital | Boston, MA | $125,000 | 2023 | — |
| The Regents of the University of California - San Francisco | San Francisco, CA | $121,118 | 2023 | — |
| University of Massachusetts Medical School | North Worcester, MA | $106,368 | 2023 | — |
| Oregon Health & Sciences University | Portland, OR | $97,067 | 2023 | — |
| University of Washington | Seattle, WA | $76,732 | 2023 | — |
| Yale University | New Haven, CT | $62,500 | 2023 | — |
| Georgetown University | Washington, DC | $62,500 | 2023 | — |
| Boston Children's Hospital | Boston, MA | $62,500 | 2023 | — |
AMERICAN ASSOCIATION FOR CANCER RESEARCH (AACR)
$164,000ALPHA OMEGA ALPHA HONOR MEDICAL SOCIETY OREGON UNIVERSITY
$100,000UNIVERSITY OF WASHINGTON
$62,500UNIVERSITY OF WASHINGTON
$62,500UNIVERSITY OF CHICAGO SELF INSURANCE TRUST
$52,660THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
$50,000THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
$50,000ALPHA OMEGA ALPHA HONOR MEDICAL SOCIETY OREGON UNIVERSITY
$100,000UNIVERSITY OF WASHINGTON
$62,500UNIVERSITY OF CHICAGO SELF INSURANCE TRUST
$52,660THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
$50,000University of Minnesota
$160,000University of Washington
$144,052The Regents of the University of California - San Francisco
$121,118University of Massachusetts Medical School
$106,368University of Washington
$76,732