About Fanconi Cancer Foundation
Our mission is to improve the lives of people affected by Fanconi anemia and associated cancers worldwide by funding exceptional research and empowering our community.
Focus Areas
Fanconi anemia (FA) researchFA-associated cancer prevention and treatmentGene therapy and gene editingPreclinical models and clinical trialsEarly detection and screeningPatient support, education, and advocacyData harmonization and international registries
Who They Fund
individuals diagnosed with Fanconi anemiafamily members and caregivers of FA patientsFA clinical researchers and treating clinicians
Funding Style
About Fanconi Cancer Foundation
The Fanconi Cancer Foundation centers its grantmaking on Fanconi anemia and associated cancers, with a program mix that links research, clinical coordination, and patient support. Its recent awards show sustained support for large cancer-research collaborations, including repeated grants to Stand Up To Cancer and the National Cancer Institute. Those awards sit alongside funding for university-based work in genomics, translational science, and disease-specific infrastructure. The foundation backs both investigator-led projects and multi-institution initiatives. Recent grants include support for Stanford University, the American Association for Cancer Research, Columbia University, and the Broad Institute, suggesting a strong emphasis on research networks and institutions that can move findings toward clinical use. Its stated mission also includes empowering the Fanconi anemia community, and its program list extends beyond laboratory research to consortium-based care pathways, screening, and data-sharing systems. That combination makes the foundation distinct: it is not only financing scientific studies, but also building the research and care structures around a rare disease community. The result is a portfolio that connects basic biology, cancer prevention, and patient-facing support around Fanconi anemia worldwide.
What Fanconi Cancer Foundation Funds
In cancer research, the foundation gave $375,000 to Stand Up To Cancer for collaborative work tied to Fanconi anemia-associated cancer research. It also supported the National Cancer Institute with $369,154, reinforcing a strong interest in translational and clinical research capacity. For academic research, it awarded $265,834 to Stanford University for work connected to Fanconi anemia science, and $105,000 to the Broad Institute Inc. These grants align with the foundation’s focus on gene therapy, gene editing, and preclinical models. The foundation also funds consortium and education infrastructure. It gave $164,000 to the American Association for Cancer Research, supporting the kind of scientific convening and knowledge-sharing that fits its collaborative model. In addition, grants to Columbia University and the University of Minnesota show support for institutions involved in broader Fanconi anemia research and clinical work.
How Fanconi Cancer Foundation Gives
Financial Snapshot
Annual Giving
$3.5M
Total Assets
$6.4M
Total Revenue
$4.3M
Total Expenses
$5.5M
Typical Grant Size
Most grants fall between $53K and $124K, with a median of $63K.
25th Percentile
$53K
Median
$63K
75th Percentile
$124K
Geographic Reach
National11 states funded
About 12% of grants go to recipients in CA.
Funding intensity
LowHigh
Headquarters
Leadership
MARK QUINLAN
Accepts unsolicited proposals
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