Kindora
FeaturesSocial Enterprise FundingPricingDevelopers
AboutLive Demos
Sign InSign Up
    Kindora
    FeaturesSocial Enterprise FundingPricingDevelopers
    AboutLive Demos
    Sign InSign Up
    1. Home
    3. Foundations
    5. Angelman Syndrome Foundation
    Angelman Syndrome Foundation logo

    Angelman Syndrome Foundation

    ActiveMedical Research
    AURORA, ILWebsite6309784245

    About Angelman Syndrome Foundation

    To advance research, connect families, and accelerate development of treatments and a cure for Angelman syndrome while providing education, resources and support to the global Angelman community.

    Focus Areas

    Rare disease researchGeneticsNeurologyClinical trialsFamily support and servicesAdvocacy and education

    Who They Fund

    individuals with Angelman syndromefamilies and caregivers of people with Angelman syndromeresearchers and clinical investigators in rare disease

    Funding Style

    translational research fundingclinical trial support

    About Angelman Syndrome Foundation

    Angelman Syndrome Foundation Inc centers its giving on research and clinical progress for Angelman syndrome, with an annual grant budget of $2,670,507 and a recent pattern that includes large research awards to universities and medical centers. In 2025, the foundation awarded $359,000 to University of California - Davis for research, followed by $296,913 to University of North Carolina Chapel Hill for research. Those awards sit alongside a broader portfolio that includes investigator-initiated studies, clinical research, and therapeutic development. The foundation’s stated purpose is to advance research, connect families, and accelerate development of treatments and a cure for Angelman syndrome while providing education, resources and support to the global Angelman community. Recent grant recipients also show support for clinical and translational work at institutions such as RTI International, New York University Dept of Molecular Pathobiology, and University of Connecticut Health Center. The recurring emphasis on Angelman syndrome research makes the organization a specialized funder rather than a general health philanthropy.

    What Angelman Syndrome Foundation Funds

    The foundation’s clearest programmatic emphasis is Angelman syndrome research. It gave $176,023 to RTI International in 2025 for research, and its annual research grant program supports investigator-initiated studies, including one- and two-year projects and pilot or high-risk work. Clinical and translational science are also visible in the portfolio: New York University Dept of Molecular Pathobiology received $125,000 in 2025 for research, and University of Texas Southwestern Medical Center received $100,000 in 2025 for research. Family support and clinical care are part of the broader mission, which also includes education, resources, and support for the Angelman community. The active programs show a strong interest in basic science, preclinical studies, clinical research, and therapeutic development.

    How Angelman Syndrome Foundation Gives

    Typical awards cluster in a mid-six-figure research range, with p25 at $75,000, median at $96,940, and p75 at $154,000. The active research grant program is an annual call for proposals and supports one- and two-year projects, including unsolicited applications. The foundation is classified as a regular funder, not a DAF, and it does not fund individuals or make program-related investments. Recent grants show repetition to the same institutions across years, including University of North Carolina Chapel Hill and RTI International, which points to ongoing institutional relationships rather than one-off awards.

    Financial Snapshot

    Annual Giving

    $1.2M

    Total Assets

    $2.7M

    Total Revenue

    $3.9M

    Total Expenses

    $3.9M

    Typical Grant Size

    Most grants fall between $75K and $154K, with a median of $97K.

    25th Percentile

    $75K

    Median

    $97K

    75th Percentile

    $154K

    Geographic Reach

    National8 states funded

    About 10% of grants go to recipients in CA.

    Funding intensity
    Low
    High
    Headquarters

    Leadership

    AMANDA MOORE

    Accepts unsolicited proposals

    Deep Analysis

    Unlock Deep Analysis

    Sign up for a free Kindora account to access AI-generated insights into this funder's giving patterns, decision-makers, and fit signals.

    Get Started Free

    Similar Funders

    See Similar Funders

    Free Kindora accounts unlock side-by-side comparisons with foundations that share this funder's focus areas and giving profile.

    Get Started Free

    Explore related grant guides

    Health GrantsHealth Grants in IllinoisGrants in Illinois

    Want a Personalized Pitch for Angelman Syndrome Foundation?

    Sign up free to see how well your nonprofit fits this funder, get an AI-generated pitch, and unlock similar foundations.

    Get Started FreeView Pricing
    Free plan available
    No contracts
    Cancel anytime
    Free Weekly Newsletter

    The Grant Brief

    Weekly grant intelligence for social impact leaders. Curated opportunities, funding trends, and strategic insights — free.

    Join 500+ social impact leaders. Unsubscribe anytime. Privacy Policy

    Trusted by mission-driven teams at organizations nationwide

    Kindora Logo

    At Kindora, we combine data-driven insights with a human touch to create meaningful, strategic fundraising solutions for mission-driven organizations of all sizes.

    Get The Grant Brief — free weekly grant intelligence

    Quick Links

    • Features
    • Social Enterprise Funding
    • About Us
    • Mission
    • How It Works
    • Pricing
    • Developers
    • Sales deck
    • Live Demand Wall
    • Philanthropy Jobs
    • Nonprofit Compensation
    • Live demo (every plan)
    • Individual prospecting demoBeta
    • Blog
    • FAQ
    • Getting Started

    Connect With Us

    LinkedInTwitterFacebook

    Find Grants

    Grants by CauseGrants by StateFoundations by CityEducation GrantsHealth GrantsArts & Culture GrantsEnvironment GrantsCommunity Development GrantsYouth Development Grants

    © 2026 Kindora. All rights reserved.

    Privacy PolicyTerms of ServiceSystem Status
    EIN (Tax ID): 59-3092842Latest Form 990: 2025Total assets: $2.7M3 filings on recordFind their full 990 filing →
    See If You're a Fit — FreeFree account · instant fit score · similar funders
    patient and family services funding
    advocacy and policy support
    community program grants

    Topics

    Angelman syndrome researchrare disease therapeutic developmentclinical trials infrastructure and enrollmentpatient education and clinical resourcesfamily support and community programsrare disease advocacy

    Where Angelman Syndrome Foundation Makes Grants

    The foundation gives nationally, with 100% of recent grants going to U.S. recipients. The top state by grant count is North Carolina, and 10% of grants went to recipients in Illinois, the headquarters state. Recent awards reached Sacramento, Chapel Hill, Research Triangle Park, New York, Farmington, Dallas, Austin, and Washington, DC. The pattern is institution-heavy and concentrated in major research centers rather than a single metro area.

    Frequently Asked Questions About Angelman Syndrome Foundation

    What kinds of projects does Angelman Syndrome Foundation Inc fund?

    Its active programs fund Angelman syndrome research across basic science, translational research, preclinical studies, clinical research, and therapeutic development. The annual research grant program also supports investigator-initiated studies, including pilot and high-risk projects, plus clinical and UBE3A-focused work.

    Does the foundation accept unsolicited proposals?

    Yes. The Call for Proposals and the annual research grant program both accept unsolicited applications. The research program is framed as an annual call for proposals for investigator-initiated studies.

    What is the typical grant size?

    Typical awards are in the mid-six-figure range for this dataset: p25 is $75,000, median is $96,940, and p75 is $154,000. The annual research grant program itself is described as supporting grants from $0 to $100,000.

    What regions do its grants support?

    The foundation gives nationally in the United States, and the recent grants dataset shows 21 grants to U.S. recipients. North Carolina is the top state by grant count, while Illinois accounts for 10% of grants.

    Does it support work outside research?

    Yes. The foundation’s mission includes connecting families and providing education, resources, and support to the global Angelman community, and its program list also includes a named fellowship for clinical training and clinician development related to Angelman syndrome care.

    Latest 990 Filing

    2025

    Source: IRS Form 990-PF, fiscal year 2025.

    Open Grant Opportunities

    Current and upcoming funding from Angelman Syndrome Foundation that your nonprofit may be able to apply for.

    Open nowRolling / open intakeAward: Up to $100K

    ASF Research Grant (Annual Call for Proposals)

    UBE3A regulation and functionTherapeutic strategiesClinical care and innovation+4 more

    Who can apply: Researchers, clinicians, and institutions focused on advancing Angelman syndrome research. ASF welcomes academic and industrial teams; grants are awarded to institutions rather than individuals. A faculty mentor may serve as institutional PI for postdoctoral/fellow-led projects.

    Deadline: Annual submission deadline: August 15th; review August–October; SAC and Board review in November; funding dispersed in January.

    View & apply

    Track these deadlines, get reminders, and see how well your nonprofit fits — free with a Kindora account.

    Create a free account

    Deadlines and eligibility are summarized from public sources and may change — always confirm the details on the funder's official application page before applying.

    Recent Grants

    Most recent grants reported to the IRS.

    RecipientLocationAmountYearPurpose
    UNIVERSITY OF CALIFORNIA - DAVISSACREMENTO, CA$359,0002025RESEARCH
    UNIVERSITY OF NORTH CAROLINA CHAPEL HILLCHAPEL HILL, NC$296,9132025RESEARCH
    RTI INTERNATIONALRESEARCH TRIANGLE PARK, NC$176,0232025RESEARCH
    NEW YORK UNIVERSITY DEPT OF MOLECULAR PATHOBIOLOGYNEW YORK, NY$125,0002025RESEARCH
    UNIVERSITY OF CONNECTICUT HEALTH CENTERFARMINGTON, CT$100,0002025RESEARCH
    UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTERDALLAS, TX$100,0002025RESEARCH
    FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICSAUSTIN, TX$78,4932025RESEARCH
    UNIVERSITY OF NORTH CAROLINA CHAPEL HILLCHAPEL HILL, NC$222,6902023RESEARCH
    UNIVERSITY OF NORTH CAROLINA CHAPEL HILLCHAPEL HILL, NC$222,6902023RESEARCH
    FASTLAKE BLUFF, IL$154,0002023—
    FASTLAKE BLUFF, IL$154,0002023—
    RTI INTERNATIONALBETHESDA, MD$96,9402023—
    RTI INTERNATIONALBETHESDA, MD$96,9402023—
    CHILDRENS HOSPITAL - LALOS ANGELES, CA$86,3382023—
    CHILDRENS HOSPITAL - LALOS ANGELES, CA$86,3382023—
    HMJ FOUNDATIONBETHESDA, MD$75,0002023RESEARCH
    HMJ FOUNDATIONBETHESDA, MD$75,0002023RESEARCH
    CHILDRENS NATIONAL HOSPITALWASHINGTON, DC$68,9402023RESEARCH
    CHILDRENS NATIONAL HOSPITALWASHINGTON, DC$68,9402023RESEARCH
    UCLALOS ANGELES, CA$13,6312023—
    UCLALOS ANGELES, CA$13,6312023—

    UNIVERSITY OF CALIFORNIA - DAVIS

    $359,000
    SACREMENTO, CA2025

    RESEARCH

    UNIVERSITY OF NORTH CAROLINA CHAPEL HILL

    $296,913
    CHAPEL HILL, NC2025

    RESEARCH

    RTI INTERNATIONAL

    $176,023
    RESEARCH TRIANGLE PARK, NC2025

    RESEARCH

    NEW YORK UNIVERSITY DEPT OF MOLECULAR PATHOBIOLOGY

    $125,000
    NEW YORK, NY2025

    RESEARCH

    UNIVERSITY OF CONNECTICUT HEALTH CENTER

    $100,000
    FARMINGTON, CT2025

    RESEARCH

    UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER

    $100,000
    DALLAS, TX2025

    RESEARCH

    FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS

    $78,493
    AUSTIN, TX2025

    RESEARCH

    UNIVERSITY OF NORTH CAROLINA CHAPEL HILL

    $222,690
    CHAPEL HILL, NC2023

    RESEARCH

    UNIVERSITY OF NORTH CAROLINA CHAPEL HILL

    $222,690
    CHAPEL HILL, NC2023

    RESEARCH

    FAST

    $154,000
    LAKE BLUFF, IL2023

    FAST

    $154,000
    LAKE BLUFF, IL2023

    RTI INTERNATIONAL

    $96,940
    BETHESDA, MD2023

    RTI INTERNATIONAL

    $96,940
    BETHESDA, MD2023

    CHILDRENS HOSPITAL - LA

    $86,338
    LOS ANGELES, CA2023

    CHILDRENS HOSPITAL - LA

    $86,338
    LOS ANGELES, CA2023

    HMJ FOUNDATION

    $75,000
    BETHESDA, MD2023

    RESEARCH

    HMJ FOUNDATION

    $75,000
    BETHESDA, MD2023

    RESEARCH

    CHILDRENS NATIONAL HOSPITAL

    $68,940
    WASHINGTON, DC2023

    RESEARCH

    CHILDRENS NATIONAL HOSPITAL

    $68,940
    WASHINGTON, DC2023

    RESEARCH

    UCLA

    $13,631
    LOS ANGELES, CA2023

    UCLA

    $13,631
    LOS ANGELES, CA2023