To cure Multiple Sulfatase Deficiency by bringing awareness, funding research toward treatment (including gene therapy), and supporting families through education, resources, and community.
United Msd Foundation Inc centers its giving on Multiple Sulfatase Deficiency, backing research and family support around a rare genetic disorder with no listed broad charitable portfolio. Its current grant record shows a single 2023 award of $351,701 to Ut Southwestern Medical Center in Dallas for a single-dose toxicity study, underscoring a research-first approach aimed at treatment development. The foundation’s stated program areas point to a coordinated strategy: gene therapy, natural history studies, biomarker development, patient registry and biobank work, and education for families and caregivers. That mix suggests a funder trying to move MSD research from basic understanding toward clinical readiness while also supporting the community affected by the disease. The foundation’s research infrastructure is unusually specific. It manages a biobank in partnership with Genetic Alliance and Precision for Medicine, and it hosts a patient registry on MyDataHelps, giving researchers access to biospecimens and de-identified data for biomarker discovery, endpoint development, and clinical trial planning. Alongside that, it funds competitive Research Grants for MSD projects and describes a public-private partnership under a Bespoke Award structure tied to treatment development.
Multiple Sulfatase Deficiency research is the core of United Msd Foundation Inc’s grantmaking. A 2023 grant of $351,701 to Ut Southwestern Medical Center supported a single-dose toxicity study, placing preclinical safety work within the foundation’s treatment pipeline. Beyond toxicology, the foundation’s stated research interests include gene therapy, including AAV9 SUMF1 work, natural history studies, biomarker identification, and other clinical-trial-enabling projects. It also supports patient registry and biobanking infrastructure, with a registry hosted on MyDataHelps and a biobank operated with Genetic Alliance and Precision for Medicine. That research support is paired with family-facing work: education, resources, and community for individuals living with MSD and their caregivers.
United Msd Foundation Inc’s grant size data shows a single observed amount: the 25th percentile, median, and 75th percentile are all $351,701. That points to one recorded grant in the latest filing year rather than a spread of award sizes. The foundation is a public charity, and its program description includes both competitive research grants and a structured biobank/patient-registry access program. It also lists a Bespoke Award tied to MSD treatment development, though public application details are not provided for that initiative. The Research Grants program accepts unsolicited requests, indicating an open application pathway for at least part of its research funding.
$11K
$224K
$331K
$388K
Most grants fall between $352K and $352K, with a median of $352K.
25th Percentile
$352K
Median
$352K
75th Percentile
$352K
About 0% of grants go to recipients in TX.
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Grant activity is regional, but the recorded recipient footprint is concentrated in the United States. The only named recent grantee is Ut Southwestern Medical Center in Dallas, Texas, and Texas is also the top state by grant count. No grants were reported to recipients in Mississippi, the foundation’s headquarters state, so its giving pattern is distinct from its base in Ocean Springs. The country distribution shows 100% of grants to U.S. recipients.
The foundation focuses on Multiple Sulfatase Deficiency, with stated priorities in gene therapy, natural history studies, biomarker development, patient registry and biobanking, and family education and support. Its summary states the goal is to cure MSD by funding research and supporting families through education, resources, and community.
Its 2023 grant of $351,701 went to Ut Southwestern Medical Center in Dallas, Texas, for a single-dose toxicity study. That places the foundation’s recent grantmaking in preclinical research tied to treatment development.
Yes. The Research Grants program is described as accepting unsolicited applications for projects that advance treatments and cures for Multiple Sulfatase Deficiency, including work in gene therapy, natural history studies, biomarker development, and preclinical toxicology.
It manages a biobank in partnership with Genetic Alliance and Precision for Medicine and a patient registry hosted on MyDataHelps. Researchers can request access to biospecimens and de-identified registry data for biomarker discovery, natural history studies, endpoint identification, and clinical trial planning.
Alongside research funding, the foundation describes family-oriented support that includes education, resources, and community for individuals living with MSD and their caregivers. Its stated beneficiary groups include patients, families, caregivers, and rare disease researchers.
2025
Source: IRS Form 990-PF, fiscal year 2025.
Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| GENETIC ALLIANCE | DAMASCUS, MD | $10,729 | 2025 | SAMPLE MANAGEMENT |
| CHARLES RIVER LABORATORIES INC | WILMINGTON, VA | $251,818 | 2024 | TOXICOLOGY STUDY |
| GENETIC ALLIANCE | DAMASCUS, MD | $6,197 | 2024 | SAMPLE MANAGEMENT |
| UT SOUTHWESTERN MEDICAL CENTER | DALLAS, TX | $351,701 | 2023 | SINGLE DOSE TOXICITY STUDY |
GENETIC ALLIANCE
$10,729SAMPLE MANAGEMENT
CHARLES RIVER LABORATORIES INC
$251,818TOXICOLOGY STUDY
GENETIC ALLIANCE
$6,197SAMPLE MANAGEMENT
UT SOUTHWESTERN MEDICAL CENTER
$351,701SINGLE DOSE TOXICITY STUDY
Current and upcoming funding from United Msd Foundation that your nonprofit may be able to apply for.
Who can apply: Researchers studying MSD or related translational/clinical questions may request access. Requests are managed through the Foundation (Patient Research Coordinator) and may require data/sample use agreements or partnership with hosting organizations.
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Create a free accountDeadlines and eligibility are summarized from public sources and may change — always confirm the details on the funder's official application page before applying.
