Parent Project for Muscular Dystrophy Research
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About Parent Project for Muscular Dystrophy Research
At Parent Project Muscular Dystrophy, we accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Focus Areas
Duchenne muscular dystrophyBecker muscular dystrophyResearch grantsClinical careAdvocacyAccess to therapiesCertified care centers
Who They Fund
individuals with Duchenne muscular dystrophy (pediatric and lifelong patients)families and caregivers of people with DMDclinical care centers (PPMD-certified Duchenne Care Centers)researchers and clinician-scientists in neuromuscular disease
About Parent Project for Muscular Dystrophy Research
The Parent Project for Muscular Dystrophy Research Inc. centers its funding on Duchenne muscular dystrophy, with grants that move from basic research into care delivery, policy, and access to approved therapies. Its recent awards show a consistent emphasis on building the infrastructure around the disease as well as the science itself: support for PPMD-certified care centers, biobank and biorepository work, newborn screening advocacy, and translational studies tied to gene therapy development. A major recent award went to Cincinnati Children’s Hospital Mc for research-action network work and maintaining PPMD Certified Duchenne Care Center standards, reflecting the foundation’s interest in clinical systems as well as laboratory progress. Another large grant supported the University of Florida Foundation for biobank work, cardiac gene therapy development, meeting support, and preclinical therapeutic assessment. The foundation also backs specialized research at major academic medical centers, including studies of molecular and cellular dynamics at single-nuclei resolution and anti-AAV immune mitigation. Across the grant list, its role is not limited to one type of recipient. It funds hospitals, universities, research foundations, and regulatory-science partners, all tied to Duchenne muscular dystrophy and the pathway from discovery to treatment.
What Parent Project for Muscular Dystrophy Research Funds
In care infrastructure, the foundation funded The Nemours Foundation for maintaining PPMD Certified Duchenne Care Center standards, and it also supported Team Joseph for the same care-center program. That pattern shows a focus on standardized clinical support, not only research. In newborn screening advocacy, it awarded the University of Rochester Medical Center for newborn screening work. In gene therapy, NYU Langone Health received support for gene therapy, while the University of Florida Foundation was funded for cardiac gene therapy development and preclinical therapeutic assessment. The foundation also invests in translational and regulatory work: Critical Path Institute received support for the Duchenne Regulatory Science Consortium, and the Research Foundation for SUNY (Binghamton) was funded for work targeting innate immune responses to transgene and AAV vector use in DMD. Its research topics also extend to molecular profiling, with the Regents of the University of California - LA funded for DMD molecular and cellular dynamics at single nuclei resolution.
Financial Snapshot
Annual Giving
$2.5M
Total Assets
$12.6M
Total Revenue
$14.3M
Total Expenses
$12.9M
Typical Grant Size
Most grants fall between $25K and $100K, with a median of $50K.
25th Percentile
$25K
Median
$50K
75th Percentile
$100K
Geographic Reach
National21 states funded
About 0% of grants go to recipients in OH.
Funding intensity
LowHigh
Headquarters
Leadership
PATRICIA A FURLONG
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