About Hht Foundation
Cure HHT's mission is to find, treat, and cure hereditary hemorrhagic telangiectasia (HHT).
Focus Areas
Hereditary hemorrhagic telangiectasia (HHT)Medical researchPatient supportClinical educationTreatment guidelinesRare disease advocacy
Who They Fund
patients with HHT (Hereditary Hemorrhagic Telangiectasia)clinical treatment centers / specialty clinicsrare disease care networks
Funding Style
reimbursable grant fundingfederal partnership fundingcampaign/restricted fundraising
About Hht Foundation
Hht Foundation’s grantmaking is centered on hereditary hemorrhagic telangiectasia, with most of its recent dollars supporting HHT clinical centers, rare-disease care networks, and project-specific research and treatment infrastructure. In 2025, its largest grants went to Mayo Clinic for HRSA HHT Centers and DOD grants reimbursable support and to Massachusetts General Hospital for HRSA HHT Centers, placing large awards behind established medical institutions that serve HHT patients. The pattern continues across a national set of specialty programs: Augusta University Research Institute Inc, the University of North Carolina at Chapel Hill Office of Sponsored Program, Yale University Office of Sponsored Projects, UCSF Regents of the University of California, and the University of Utah all appear among the larger 2025 awards tied to HHT center work. The foundation also supported Columbia University through a called-to-cure campaign and gave project-restricted support to University of California Los Angeles Extramural Fund Management, showing that its giving includes both center-based infrastructure and targeted campaign funding. Its 2024 grants follow the same clinical and research orientation, with repeat support to several of the same medical institutions.
What Hht Foundation Funds
A core part of Hht Foundation’s giving supports HHT centers of excellence and specialty clinical care. It gave $194,348 to Mayo Clinic for HRSA HHT Centers, and $192,184 to Massachusetts General Hospital for the same work. The foundation also backed regional medical centers with HHT-related support, including $166,982 to Augusta University Research Institute Inc and $140,087 to The University of North Carolina at Chapel Hill Office of Sponsored Program, both labeled HRSA HHT Centers. Research and treatment infrastructure are another clear theme. It gave $136,752 to Yale University Office of Sponsored Projects for HRSA HHT Centers, and $101,906 to Ut Southwestern Medical Center for the same category. The foundation also uses campaign-linked and reimbursable grant structures, including support tied to a called-to-cure campaign and DOD grants reimbursable designations.
How Hht Foundation Gives
Typical award sizes cluster in the tens of thousands to low six figures, with a p25 of $34,638, median of $70,474, and p75 of $129,606. The recent record shows repeat support to several recipients across 2024 and 2025, including Augusta University Research Institute Inc, Columbia University, the University of Colorado Anschutz Medical Campus, Washington University in St Louis-school of Medicine Administration, Oregon Health Science University - Office of Proposal & Award Management, Mayo Clinic, Trustees of the University of Pennsylvania, and University of Utah. That pattern points to ongoing institutional relationships rather than one-off gifts. The foundation is also described as using reimbursable grant funding, federal partnership funding, campaign/restricted fundraising, and project-specific support.
Financial Snapshot
Annual Giving
$2.3M
Total Assets
$8.1M
Total Revenue
$9.8M
Total Expenses
$7.1M
Typical Grant Size
Most grants fall between $35K and $130K, with a median of $70K.
25th Percentile
$35K
Median
$70K
75th Percentile
$130K
Geographic Reach
National16 states funded
About 0% of grants go to recipients in CA.
Funding intensity
LowHigh
Headquarters
Leadership
MARIANNE CLANCY
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