About Chordoma Foundation
Support people affected by chordoma and accelerate research toward effective treatments and cures through funding, shared resources, and collaboration.
Focus Areas
chordoma researchcancer researchdrug discovery (TBXT)immunotherapypediatric chordomapatient support and navigation
Who They Fund
individual researchersacademic institutions / research labs
Funding Style
project-specific research fundingrestricted (purpose-limited) grantcompetitive research grant awards
About Chordoma Foundation
The Chordoma Foundation’s recent grantmaking centers on one disease: chordoma. Its support is built around research funding, shared resources, and collaboration aimed at effective treatments and cures, with grant programs that include the Chordoma Foundation Labs, the Immunotherapy Initiative, the Pediatric Chordoma Initiative, and the MAC Fund for clinical-trial launch and enrollment support. The foundation also funds individuals, alongside academic institutions and research labs, through restricted, project-specific awards. Recent grants show a strong research orientation across established cancer centers and specialized laboratories. Memorial Sloan Kettering Cancer Center received $407,935 in 2025, while the University of Texas MD Anderson Cancer Center received $400,000 in 2025 and $365,847 in 2024. Other large awards went to NYU Grossman School of Medicine, The Broad Institute Inc, and Cancer Research Institute. The pattern points to a funder that supports both discovery-stage science and translational work tied to the chordoma pipeline. The portfolio also reaches into pediatric chordoma, drug discovery around TBXT, and clinical-trial readiness, reflecting a disease-specific strategy rather than broad cancer philanthropy. Grants to groups such as Children’s Hospital of Philadelphia CHOP, UPMC Department of Neurosurgery, and Redesign Science Inc show that the foundation backs a mix of clinical, institutional, and project-based research efforts.
What Chordoma Foundation Funds
Chordoma research is the foundation’s core emphasis, and recent awards show that focus across multiple scientific settings. The Broad Institute Inc received $299,789 in 2025 for research, while The Jackson Laboratory received $125,720 in 2023 for research support tied to the same disease area. Translational and drug-discovery work also appears in the recent grants list. Redesign Science Inc received $15,000 in 2025, aligning with the foundation’s TBXT drug-discovery emphasis. Clinical and patient-oriented work is part of the mix as well. Children’s Hospital of Philadelphia CHOP received $84,723 in 2025 for research, and the foundation’s program list includes the MAC Fund for clinical-trial launch and enrollment support. Pediatric chordoma is another defined area. The foundation lists a Pediatric Chordoma Initiative focused on research, model development, and therapies for children, adolescents, and young adults.
How Chordoma Foundation Gives
Financial Snapshot
Annual Giving
$2.4M
Total Assets
$11.4M
Total Revenue
$5.4M
Total Expenses
$6.8M
Typical Grant Size
Most grants fall between $50K and $288K, with a median of $100K.
25th Percentile
$50K
Median
$100K
75th Percentile
$288K
Geographic Reach
National10 states funded
About 7% of grants go to recipients in NY.
Funding intensity
LowHigh
Headquarters
Leadership
JOSH SOMMER
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