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ALS Association — Research Funding Opportunities (General/Programs & Awards)
basic scienceclinical trialsprevention+2 more
Who can apply: Each request for applications outlines the scope and eligibility.
About Amyotrophic Lateral Sclerosis Association
TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
Focus Areas
ALS researchDrug development and clinical trialsClinical care and certified treatment centersPatient and caregiver support servicesAdvocacy and public policy
Funding Style
liquidating distributionone-time/final grantnon-programmatic/administrative distribution
Topics
organizational dissolution/closureasset transfer/charitable distributioncompliance with IRS Form 990 / Schedule N reporting
About Amyotrophic Lateral Sclerosis Association
Amyotrophic Lateral Sclerosis Association’s recent giving is defined by a liquidating distribution to The ALS Association in Arlington, Virginia, alongside a prior research grant to the same recipient. That combination points to a funder whose final grants sit at the intersection of ALS research and organizational transfer, rather than a broad, ongoing portfolio of many small awards. The foundation’s stated mission is to discover treatments and a cure for ALS and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Its active programs show that mission in practice: support for preclinical therapy development, clinical trials, exploratory research, care centers, and patient and caregiver services. The result is a grantmaking profile centered on ALS science and the systems around it — from early-stage drug development to clinical infrastructure and support programs. One recent award was labeled for research, while the largest recent award was tied to a liquidating distribution, indicating that the foundation’s current profile is shaped by both programmatic support and a final asset distribution tied to dissolution.
What Amyotrophic Lateral Sclerosis Association Funds
The foundation funds several ALS-specific research lanes. Through the Lawrence and Isabel Barnett Drug Development Program, it supports preclinical research projects that advance promising ALS therapies toward clinical testing. Its Trial Capacity Awards are aimed at increasing participation and diversity in ALS clinical trials while improving speed and efficiency. The ALS Association Seed Grant Program backs exploratory ALS research projects, and the Prevention Grants Program focuses on efforts to prevent or delay ALS harms with the goal of affecting clinical care within 5–7 years. It also runs the ALS Roundtable Program, which convenes industry, academia, nonprofits, and funders to turn dialogue into action and catalyze collaborations.
How Amyotrophic Lateral Sclerosis Association Gives
Typical grant sizes are large: the 25th percentile is $1,584,902, the median is $1,666,550, and the 75th percentile is $1,748,197. The recent record shows two grants, both to The ALS Association in Arlington, Virginia, one in 2024 and one in 2023, which suggests a very concentrated distribution pattern rather than a wide spread of recipients. The foundation is classified as a regular funder and does not fund individuals or make program-related investments. Some of its active programs accept unsolicited applications, including the ALS Association research funding opportunities umbrella and the Seed Grant Program.
Financial Snapshot
Annual Giving
$1.8M
Total Assets
$0
Total Revenue
$55K
Total Expenses
$1.8M
Typical Grant Size
Most grants fall between $1.6M and $1.7M, with a median of $1.7M.
25th Percentile
$1.6M
Median
$1.7M
75th Percentile
$1.7M
Geographic Reach
Regional1 state funded
About 0% of grants go to recipients in VA.
Funding intensity
LowHigh
Headquarters
Leadership
RAY CARSON
Accepts unsolicited proposals
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