To improve diagnosis, management and treatment of Marfan syndrome and related connective-tissue conditions through research, education, patient & family support, and advocacy so people with these conditions can know, connect, and thrive.
The Marfan Foundation Inc concentrates its funding on Marfan syndrome and related connective-tissue conditions, pairing research support with education, family support, and advocacy. Its active program list includes named awards for research careers, including the Victor McKusick Fellowship, Career Development Award, and Innovators Award, all oriented to genetic aortic and vascular research. That focus shows up in the recent grants list, where major awards went to Stanford University School of Medicine and Johns Hopkins University School of Medicine for research. The foundation also backs work that connects research to clinical practice and community needs. Recent grants include support for The Arnold P Gold Foundation and Positive Exposure, alongside grants to academic medical centers such as Duke University, Yale University, and Baylor College of Medicine. The mix suggests a funder that prioritizes disease-specific science while also supporting education and patient-facing organizations tied to connective tissue disorders.
In medical research, the foundation funds a broad set of institutions studying Marfan syndrome and related connective-tissue disorders. A 2025 grant of $100,000 went to Yale University for research, and another 2025 grant of $100,000 went to The Regents of the University of California - Los Angeles for research. It also supported Cleveland Clinic Lerner Research Institute, Baylor College of Medicine, and Icahn School of Medicine at Mount Sinai in recent cycles. The foundation also funds education and outreach-related organizations. It gave $100,900 to The Arnold P Gold Foundation in 2024 and another $15,000 to that organization in 2023, both listed as research grants. For patient-facing awareness and communication work, it awarded $5,000 to Positive Exposure in 2023. These grants fit the foundation’s stated emphasis on education, outreach, and support for people affected by these conditions.
Typical grant size sits at $15,000 at the 25th percentile, $92,111 at the median, and $100,225 at the 75th percentile, indicating a cluster around the $100,000 level with some smaller awards. The recent list also shows repeat support to the same recipients across multiple years, including Johns Hopkins University School of Medicine, Baylor College of Medicine, Mayo Clinic Rochester, and The Arnold P Gold Foundation. That pattern points to multi-year funding relationships rather than one-off gifts. The foundation operates as a disease-specific grantmaker and accepts unsolicited applications for several active awards, including the Victor McKusick Fellowship, Career Development Award, Innovators Award, and Camp Victory Scholarship.
$1M
$19.5M
$7.8M
$7.6M
Most grants fall between $15K and $100K, with a median of $92K.
25th Percentile
$15K
Median
$92K
75th Percentile
$100K
MICHAEL L WEAMER
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Grants are national, with all recent grants going to U.S. recipients. Baltimore appears frequently through Johns Hopkins University School of Medicine, while New York City recipients include Hospital for Special Surgery, NYU Grossman School of Medicine, Icahn School of Medicine at Mount Sinai, and Weill Medical College of Cornell University. Other recent recipients are in Stanford, Durham, Houston, New Haven, Cleveland, Los Angeles, Rochester, and Chicago. The foundation gives most often in Maryland, and 25% of grants go to recipients in New York, but the recent portfolio reaches across many major research centers.
Its funding centers on Marfan syndrome and related connective-tissue conditions. The foundation’s stated priorities include medical research, patient and family support, education and outreach, and advocacy and policy, with a strong emphasis on genetic aortic and vascular conditions.
Active research programs include the Victor McKusick Fellowship, Career Development Award, Innovators Award, and Research Grant Program. The fellowship supports postdoctoral MD or PhD researchers, while the Career Development and Innovators awards are aimed at early-career investigators and faculty working on Marfan and related vascular conditions.
The grant-size distribution is centered near $100,000. The 25th percentile is $15,000, the median is $92,111, and the 75th percentile is $100,225, showing a mix of smaller awards and larger research grants at the same time.
The foundation gives nationally across the United States, with all 22 recent grants going to U.S. recipients. Maryland is the top state by grant count, and 25% of grants go to recipients in New York.
Yes for several active programs. The Victor McKusick Fellowship, Career Development Award, Innovators Award, and Camp Victory Scholarship all accept unsolicited applications. The Research Grant Program is listed as not accepting unsolicited applications.
2025
Source: IRS Form 990-PF, fiscal year 2025.
Financiamiento actual y próximo de Marfan Foundation al que tu organización sin fines de lucro podría postularse.
¿Quién puede postularse? Investigators early in their careers seeking preliminary data in a key concept area.
Fecha límite: Next RFP expected in August 2026.
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Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| STANFORD UNIVERSITY SCHOOL OF MEDICINE | STANFORD, CA | $370,000 | 2025 | RESEARCH |
| JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE | BALTIMORE, MD | $365,000 | 2025 | RESEARCH |
| ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI | NEW YORK, NY | $100,000 | 2025 | RESEARCH |
| YALE UNIVERSITY | NEW HAVEN, CT | $100,000 | 2025 | RESEARCH |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA - LOS ANGELES | LOS ANGELES, CA | $100,000 | 2025 | RESEARCH |
| LYON FAMILY FOUNDATION | CHICAGO, IL | $10,000 | 2025 | RESEARCH |
| JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE | BALTIMORE, MD | $250,400 | 2024 | RESEARCH |
| THE ARNOLD P GOLD FOUNDATION | ENGLEWOOD CLIFFS, NJ | $100,900 | 2024 | RESEARCH |
| NYU GROSSMAN SCHOOL OF MEDICINE | NEW YORK, NY | $100,000 | 2024 | RESEARCH |
| HOSPTIAL FOR SPECIAL SURGERY | NEW YORK, NY | $100,000 | 2024 | RESEARCH |
| BAYLOR COLLEGE OF MEDICINE | HOUSTON, TX | $84,222 | 2024 | RESEARCH |
| WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY | NEW YORK, NY | $18,900 | 2024 | RESEARCH |
| MAYO CLINIC ROCHESTER | ROCHESTER, MN | $15,000 | 2024 | RESEARCH |
| AMERICAN SOCIETY FOR MATRIX BIOLOGY | ROCKVILLE, MD | $5,938 | 2024 | RESEARCH |
| JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE | BALTIMORE, MD | $350,600 | 2023 | RESEARCH |
| DUKE UNIVERSITY | DURHAM, NC | $220,000 | 2023 | RESEARCH |
| CLEVELAND CLINIC LERNER RESEARCH INSTITUTE | CLEVELAND, OH | $100,000 | 2023 | RESEARCH |
| BAYLOR COLLEGE OF MEDICINE | HOUSTON, TX | $100,000 | 2023 | RESEARCH |
| THE ARNOLD P GOLD FOUNDATION | ENGLEWOOD CLIFFS, NJ | $15,000 | 2023 | RESEARCH |
| VELOS LLC | PLYMOUTH MEETING, PA | $15,000 | 2023 | RESEARCH |
| MAYO CLINIC ROCHESTER | ROCHESTER, MN | $8,000 | 2023 | RESEARCH |
| POSITIVE EXPOSURE | E TH STREET, NY | $5,000 | 2023 | RESEARCH |
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA - LOS ANGELES
$100,000RESEARCH
LYON FAMILY FOUNDATION
RESEARCH
THE ARNOLD P GOLD FOUNDATION
$100,900RESEARCH
NYU GROSSMAN SCHOOL OF MEDICINE
$100,000RESEARCH
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
$18,900RESEARCH
AMERICAN SOCIETY FOR MATRIX BIOLOGY
$5,938RESEARCH
THE ARNOLD P GOLD FOUNDATION
$15,000RESEARCH
VELOS LLC
$15,000RESEARCH
POSITIVE EXPOSURE
$5,000RESEARCH
