What does The Marfan Foundation Inc focus on?

Its funding centers on Marfan syndrome and related connective-tissue conditions. The foundation’s stated priorities include medical research, patient and family support, education and outreach, and advocacy and policy, with a strong emphasis on genetic aortic and vascular conditions.

What kinds of grants does it offer for researchers?

Active research programs include the Victor McKusick Fellowship, Career Development Award, Innovators Award, and Research Grant Program. The fellowship supports postdoctoral MD or PhD researchers, while the Career Development and Innovators awards are aimed at early-career investigators and faculty working on Marfan and related vascular conditions.

What is the typical grant size?

The grant-size distribution is centered near $100,000. The 25th percentile is $15,000, the median is $92,111, and the 75th percentile is $100,225, showing a mix of smaller awards and larger research grants at the same time.

Are grants concentrated in one place?

The foundation gives nationally across the United States, with all 22 recent grants going to U.S. recipients. Maryland is the top state by grant count, and 25% of grants go to recipients in New York.

Can organizations apply unsolicited?

Yes for several active programs. The Victor McKusick Fellowship, Career Development Award, Innovators Award, and Camp Victory Scholarship all accept unsolicited applications. The Research Grant Program is listed as not accepting unsolicited applications.

Marfan Foundation

Name: Marfan Foundation — subvenciones, estados financieros 990 y datos de financiamiento
Creator: Kindora

ActivoEducation

PORT WASHINGTON, NYSitio web5168838712

About Marfan Foundation

To improve diagnosis, management and treatment of Marfan syndrome and related connective-tissue conditions through research, education, patient & family support, and advocacy so people with these conditions can know, connect, and thrive.

Focus Areas

Medical research (Marfan syndrome and related connective tissue disorders)Patient and family supportEducation and outreachAdvocacy and policy

Who They Fund

individuals with Marfan syndromepatients with Loeys-Dietz syndromepatients with Ehlers-Danlos syndromes and other genetic connective tissue disordersfamilies and caregivers of affected individuals

Funding Style

disease-specific research fundingpatient support and direct services

About Marfan Foundation

The Marfan Foundation Inc concentrates its funding on Marfan syndrome and related connective-tissue conditions, pairing research support with education, family support, and advocacy. Its active program list includes named awards for research careers, including the Victor McKusick Fellowship, Career Development Award, and Innovators Award, all oriented to genetic aortic and vascular research. That focus shows up in the recent grants list, where major awards went to Stanford University School of Medicine and Johns Hopkins University School of Medicine for research. The foundation also backs work that connects research to clinical practice and community needs. Recent grants include support for The Arnold P Gold Foundation and Positive Exposure, alongside grants to academic medical centers such as Duke University, Yale University, and Baylor College of Medicine. The mix suggests a funder that prioritizes disease-specific science while also supporting education and patient-facing organizations tied to connective tissue disorders.

What Marfan Foundation Funds

In medical research, the foundation funds a broad set of institutions studying Marfan syndrome and related connective-tissue disorders. A 2025 grant of $100,000 went to Yale University for research, and another 2025 grant of $100,000 went to The Regents of the University of California - Los Angeles for research. It also supported Cleveland Clinic Lerner Research Institute, Baylor College of Medicine, and Icahn School of Medicine at Mount Sinai in recent cycles. The foundation also funds education and outreach-related organizations. It gave $100,900 to The Arnold P Gold Foundation in 2024 and another $15,000 to that organization in 2023, both listed as research grants. For patient-facing awareness and communication work, it awarded $5,000 to Positive Exposure in 2023. These grants fit the foundation’s stated emphasis on education, outreach, and support for people affected by these conditions.

How Marfan Foundation Gives

Typical grant size sits at $15,000 at the 25th percentile, $92,111 at the median, and $100,225 at the 75th percentile, indicating a cluster around the $100,000 level with some smaller awards. The recent list also shows repeat support to the same recipients across multiple years, including Johns Hopkins University School of Medicine, Baylor College of Medicine, Mayo Clinic Rochester, and The Arnold P Gold Foundation. That pattern points to multi-year funding relationships rather than one-off gifts. The foundation operates as a disease-specific grantmaker and accepts unsolicited applications for several active awards, including the Victor McKusick Fellowship, Career Development Award, Innovators Award, and Camp Victory Scholarship.

Financial Snapshot

Annual Giving

$1M

Total Assets

$19.5M

Total Revenue

$7.8M

Total Expenses

$7.6M

Typical Grant Size

Most grants fall between $15K and $100K, with a median of $92K.

25th Percentile

$15K

Median

$92K

75th Percentile

$100K

Geographic Reach

National11 states funded

Intensidad de financiamiento

Baja

Alta

Sede

Leadership

MICHAEL L WEAMER

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Recipient	Location	Amount	Year	Purpose
STANFORD UNIVERSITY SCHOOL OF MEDICINE	STANFORD, CA	$370,000	2025	RESEARCH
JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE	BALTIMORE, MD	$365,000	2025	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA - LOS ANGELES	LOS ANGELES, CA	$100,000	2025	RESEARCH
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI	NEW YORK, NY	$100,000	2025	RESEARCH
YALE UNIVERSITY	NEW HAVEN, CT	$100,000	2025	RESEARCH
LYON FAMILY FOUNDATION	CHICAGO, IL	$10,000	2025	RESEARCH
JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE	BALTIMORE, MD	$250,400	2024	RESEARCH
THE ARNOLD P GOLD FOUNDATION	ENGLEWOOD CLIFFS, NJ	$100,900	2024	RESEARCH
NYU GROSSMAN SCHOOL OF MEDICINE	NEW YORK, NY	$100,000	2024	RESEARCH
HOSPTIAL FOR SPECIAL SURGERY	NEW YORK, NY	$100,000	2024	RESEARCH
BAYLOR COLLEGE OF MEDICINE	HOUSTON, TX	$84,222	2024	RESEARCH
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY	NEW YORK, NY	$18,900	2024	RESEARCH
MAYO CLINIC ROCHESTER	ROCHESTER, MN	$15,000	2024	RESEARCH
AMERICAN SOCIETY FOR MATRIX BIOLOGY	ROCKVILLE, MD	$5,938	2024	RESEARCH
JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE	BALTIMORE, MD	$350,600	2023	RESEARCH
DUKE UNIVERSITY	DURHAM, NC	$220,000	2023	RESEARCH
BAYLOR COLLEGE OF MEDICINE	HOUSTON, TX	$100,000	2023	RESEARCH
CLEVELAND CLINIC LERNER RESEARCH INSTITUTE	CLEVELAND, OH	$100,000	2023	RESEARCH
THE ARNOLD P GOLD FOUNDATION	ENGLEWOOD CLIFFS, NJ	$15,000	2023	RESEARCH
VELOS LLC	PLYMOUTH MEETING, PA	$15,000	2023	RESEARCH
MAYO CLINIC ROCHESTER	ROCHESTER, MN	$8,000	2023	RESEARCH
POSITIVE EXPOSURE	E TH STREET, NY	$5,000	2023	RESEARCH

Marfan Foundation

About Marfan Foundation

Focus Areas

Who They Fund

Funding Style

About Marfan Foundation

What Marfan Foundation Funds

How Marfan Foundation Gives

Financial Snapshot

Typical Grant Size

Geographic Reach

Leadership

Deep Analysis

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Topics

Where Marfan Foundation Makes Grants

Frequently Asked Questions About Marfan Foundation

What does The Marfan Foundation Inc focus on?

What kinds of grants does it offer for researchers?

What is the typical grant size?

Are grants concentrated in one place?

Can organizations apply unsolicited?

Oportunidades de Subvenciones Abiertas

Career Development Award

Recent Grants

Marfan Foundation

About Marfan Foundation

Focus Areas

Who They Fund

Funding Style

About Marfan Foundation

What Marfan Foundation Funds

How Marfan Foundation Gives

Financial Snapshot

Typical Grant Size

Geographic Reach

Leadership

Unlock Deep Analysis

See Similar Funders

Explora guías de subvenciones relacionadas

¿Quieres un Pitch Personalizado para Marfan Foundation?

The Grant Brief

Topics

Where Marfan Foundation Makes Grants

Frequently Asked Questions About Marfan Foundation

What does The Marfan Foundation Inc focus on?

What kinds of grants does it offer for researchers?

What is the typical grant size?

Are grants concentrated in one place?

Can organizations apply unsolicited?

Oportunidades de Subvenciones Abiertas

Career Development Award

Recent Grants