The Child Neurology Education and Research Foundation concentrates funding on pediatric neurology clinical care improvement, education and research—especially grants that support quality improvement projects (transition-of-care, care coordination) and clinician training/scholarships. It funds academic medical centers, children's hospitals, professional societies, and disease-specific patient organizations (notably epilepsy and rare neurodevelopmental disorders). Grants are often targeted, program-specific awards rather than unrestricted long-term endowments.
Child Neurology Education and Research Foundation centers its giving on pediatric neurology clinical care improvement, education, and research, with a strong emphasis on quality improvement work in transition of care and care coordination. Its recent awards also show steady support for clinician training, scholarships, and disease-specific patient organizations tied to epilepsy and rare neurodevelopmental disorders. The largest recent grants in the record went to Ann and Robert H Lurie Children's Hospital of Chicago for a PERF grant and a transition-of-care quality improvement project, and to the University of Rochester, the University of Utah, and the Rector and Visitors of the University of Virginia for PERF grants. Those awards point to a pattern of project-specific funding for academic medical centers and children's hospitals. The foundation also backed the National Tuberous Sclerosis Association DBA TSC Alliance for infantile spasms awareness work and governance support, showing that it funds both direct clinical improvement and condition-specific advocacy. Its grantees include universities, hospitals, and professional groups rather than individual recipients.
A major theme is transition-of-care work in pediatric neurology. The foundation gave $175,000 to Ann and Robert H Lurie Children's Hospital of Chicago for a transition-of-care quality improvement project, and it supported related work at Boston Children's Hospital, St Marys Hospital for Children, Washington University, and other medical centers. Care coordination is another recurring area: grants went to The Trustees of Columbia University, The General Hospital Corporation dba Massachusetts General Hospital, Baylor College of Medicine, and ChildServe Foundation Inc for quality improvement efforts in that lane. The foundation also invests in clinical education and convening, including $31,000 to Child Neurology Society for an unrestricted symposium grant and a Dodge Research Grant contribution. For rare neurodevelopmental disorders, it supported the National Tuberous Sclerosis Association DBA TSC Alliance and Dup15q Alliance Inc through infantile spasms awareness network and awareness week grants.
$231K
$739K
$1.3M
$1.9M
Most grants fall between $12K and $96K, with a median of $25K.
25th Percentile
$12K
Median
$25K
75th Percentile
$96K
About 6% of grants go to recipients in IL.
Lindsey Taveren
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Moderately concentrated: a small number of sizable institutional PERF/research grants (~$150k) to major university neurology centers plus many smaller, repeatable quality-improvement and program grants (~$13k–$25k) to hospitals, societies, and disease organizations. Mix of repeat grantees (academic centers and professional societies) and distributed funding across many children’s hospitals and advocacy groups, with emphasis on programmatic, time-limited awards.
Notable grantees: Ann and Robert H. Lurie Children's Hospital of Chicago, University of Rochester, Child Neurology Society, National Tuberous Sclerosis Association (TSC Alliance), American Epilepsy Society
Typical awards cluster around mid-five figures, with a p25 of $12,250, a median of $25,000, and a p75 of $95,688. The record includes both larger project awards and smaller training or awareness grants, such as scholarship and symposium support. Grants appear program-specific rather than unrestricted, and several recipients appear in consecutive years, including University of Louisville Research Foundation and University of Pittsburgh of the Commonwealth. The foundation is not an individual-giving vehicle, and it does not make program-related investments. The pattern is national in scope, with all recorded grants going to U.S. recipients.
The foundation’s giving is national, and the grant record is entirely U.S.-based. Illinois is the most frequent recipient state, with Chicago appearing multiple times through Ann and Robert H Lurie Children's Hospital of Chicago, Child Neurology Society, American Epilepsy Society, and Rush University Medical Center, plus Aurora through Angelman Syndrome Foundation Inc. Other repeated cities include Boston, New York, Pittsburgh, and Louisville. Recipients also appear in Rochester, Salt Lake City, Charlottesville, St. Louis, Houston, Kansas City, Irvine, Richmond, and Washington, DC. Kentucky represents 7% of grants, which is visible through Louisville-based awards rather than the foundation’s headquarters.
It funds academic medical centers, children’s hospitals, professional societies, and disease-specific patient organizations. The recent grants list includes hospitals and universities such as Ann and Robert H Lurie Children's Hospital of Chicago, the University of Rochester, and Boston Children's Hospital, along with groups like Child Neurology Society and TSC Alliance.
The record centers on pediatric neurology clinical care improvement, education, and research. Specific areas include transition-of-care quality improvement, care coordination, clinician training and scholarships, infantile spasms awareness, and support for rare neurodevelopmental disorder organizations such as TSC and Dup15q.
The grant-size distribution is mid-five figures: p25 is $12,250, median grant size is $25,000, and p75 is $95,688. The record includes smaller awards around $6,000 and larger project grants of $150,000 and $175,000.
Yes. Some recipients appear across multiple years, including University of Louisville Research Foundation, University of Pittsburgh of the Commonwealth, American Epilepsy Society, and Child Neurology Society. That pattern suggests follow-on support for selected programs rather than one-off-only giving.
No. The foundation’s giving is national, and every grant in the provided record went to a U.S. recipient. Illinois appears most often as a recipient state, and Kentucky accounts for 7% of grants.
2025
Source: IRS Form 990-PF, fiscal year 2025.
Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| University of Louisville Research Foundation Inc | Louisville, KY | $25,000 | 2025 | 2023 Quality Improvement Grants Continued - $25000 |
| Washington University | St Louis, MO | $19,000 | 2025 | 2024 Swaiman Scholarship - $6000; 2024 Quality Improvement Transition of Care Grant - $13000 |
| St Marys Hospital for Children | Bayside, NY | $13,000 | 2025 | 2024 Quality Improvement Transition of Care Grant - $13000 |
| Children's Research Institute | Washington, DC | $13,000 | 2025 | 2024 Quality Improvement Care Coordination Grant - $13000 |
| Boston Medical Center Corporation | Boston, MA | $13,000 | 2025 | 2024 Quality Improvement Transition of Care Grant - $13000 |
| Children Hospital Corporation dba Boston Childrens Hospital | Boston, MA | $13,000 | 2025 | 2024 Quality Improvement Transition of Care Grant - $13000 |
| The General Hospital Corporation dba Massachusetts General Hospital | Boston, MA | $13,000 | 2025 | 2024 Quality Improvement Care Coordination Grant - $13000 |
| Baylor College of Medicine | Houston, TX | $13,000 | 2025 | 2024 Quality Improvement Care Coordination Grant - $13000 |
| Childrens Mercy Hospital | Kansas City, MO | $13,000 | 2025 | 2024 Quality Improvement Transition of Care Grant - $13000 |
| Angelman Syndrome Foundation Inc | Aurora, IL | $13,000 | 2025 | 2024 Quality Improvement Transition of Care Grant - $13000 |
| ChildServe Foundation Inc | Johnston, IA | $13,000 | 2025 | 2024 Quality Improvement Care Coordination Grant - $13000 |
| Regents of the University of Colorado Anschutz Medical Campus | Aurora, CO | $13,000 | 2025 | 2024 Quality Improvement Transition of Care Grant - $13000 |
| Hugo W Moser Research Institute at Kennedy Krieger Inc | Baltimore, MD | $13,000 | 2025 | 2024 Quality Improvement Transition of Care Grant - $13000 |
| The Trustees of Columbia University | New York, NY | $13,000 | 2025 | 2024 Quality Improvement Care Coordination Grant - $13000 |
| University of Pittsburgh of the Commonwealth | Pittsburgh, PA | $12,500 | 2025 | 2023 Quality Improvement Grant Continued - $12500 |
| The University of Central Florida Board of Trustees | Orlando, FL | $6,000 | 2025 | 2024 Swaiman Scholarship - $6000 |
| Virginia Commonwealth University | Richmond, VA | $6,000 | 2025 | 2024 Swaiman Scholarship - $6000 |
| Case Western Reserve University | Cleveland, OH | $6,000 | 2025 | 2024 Swaiman Scholarship - $6000 |
| Rector and Visitors of the University of Virginia | Charlottesville, VA | $150,000 | 2024 | 2023 PERF Grant - $150,000 |
| University of Utah | Salt Lake City, UT | $150,000 | 2024 | 2023 PERF Grant - $150,000 |
| University of Louisville Research Foundation | Louiseville, KY | $25,000 | 2024 | 2023 Quality Improvement Grant |
| American Epilepsy Society | Chicago, IL | $12,500 | 2024 | 2023 Unrestricted Symposium Sponsorships - $12,500 |
| University of Pittsburgh of the Commonwealth | Pittsburgh, PA | $12,500 | 2024 | 2023 Quality Improvement Grant |
| Regents of the University of California | Irvine, CA | $6,000 | 2024 | 2023 Swaiman Scholar |
| Rush University Medical Center | Chicago, IL | $6,000 | 2024 | 2023 Swaiman Scholar |
| Weill Medical College of Cornell University | New York, NY | $6,000 | 2024 | 2023 Swaiman Scholar |
| Ann and Robert H Lurie Children's Hospital of Chicago | Chicago, IL | $175,000 | 2023 | 2023 PERF Grant - $150,000; 2023 Transition of Care Quality Improvement Grant - $25,000 |
| University of Rochester | Rochester, NY | $150,000 | 2023 | 2023 PERF Grant - $150,000 |
| National Tuberous Sclerosis Association DBA TSC Alliance | Silver Spring, MD | $41,375 | 2023 | 2022 Infantile Spasms Awareness Network Governance Grant - $36,375; 2022 Infantile Spasms Awareness Week Grant - $5,000 |
| Child Neurology Society | St Paul, MN | $31,000 | 2023 | 2022 Unrestricted Symposium Grant - $30,000; Dodge Research Grant Contribution - $1,000 |
| Children's Hospital Corporation DBA Boston Children's Hospital | Boston, MA | $25,000 | 2023 | 2022 Transition of Care Quality Improvement Grant |
| American Epilepsy Society | Chicago, IL | $12,500 | 2023 | 2022 Unrestricted Symposium Grant - $10,000; 2022 Parents Against Mortality in Epilepsy (PAME) Grant - $2,500 |
| Dup15q Alliance Inc | Highland Park, IL | $12,000 | 2023 | 2022 Infantile Spasms Awareness Network Governance Grant - $7,000; 2022 Infantile Spasms Awareness Week Grant - $5,000 |
2023 Quality Improvement Grants Continued - $25000
2024 Swaiman Scholarship - $6000; 2024 Quality Improvement Transition of Care Grant - $13000
2024 Quality Improvement Transition of Care Grant - $13000
2024 Quality Improvement Care Coordination Grant - $13000
2024 Quality Improvement Transition of Care Grant - $13000
2024 Quality Improvement Transition of Care Grant - $13000
The General Hospital Corporation dba Massachusetts General Hospital
$13,0002024 Quality Improvement Care Coordination Grant - $13000
2024 Quality Improvement Care Coordination Grant - $13000
2024 Quality Improvement Transition of Care Grant - $13000
2024 Quality Improvement Transition of Care Grant - $13000
2024 Quality Improvement Care Coordination Grant - $13000
Regents of the University of Colorado Anschutz Medical Campus
$13,0002024 Quality Improvement Transition of Care Grant - $13000
2024 Quality Improvement Transition of Care Grant - $13000
2024 Quality Improvement Care Coordination Grant - $13000
2023 Quality Improvement Grant Continued - $12500
The University of Central Florida Board of Trustees
$6,0002024 Swaiman Scholarship - $6000
Virginia Commonwealth University
$6,0002024 Swaiman Scholarship - $6000
Case Western Reserve University
$6,0002024 Swaiman Scholarship - $6000
Rector and Visitors of the University of Virginia
$150,0002023 PERF Grant - $150,000
University of Utah
$150,0002023 PERF Grant - $150,000
University of Louisville Research Foundation
$25,0002023 Quality Improvement Grant
American Epilepsy Society
$12,5002023 Unrestricted Symposium Sponsorships - $12,500
Regents of the University of California
$6,0002023 Swaiman Scholar
Weill Medical College of Cornell University
$6,0002023 Swaiman Scholar
2023 PERF Grant - $150,000; 2023 Transition of Care Quality Improvement Grant - $25,000
University of Rochester
$150,0002023 PERF Grant - $150,000
2022 Infantile Spasms Awareness Network Governance Grant - $36,375; 2022 Infantile Spasms Awareness Week Grant - $5,000
Child Neurology Society
$31,0002022 Unrestricted Symposium Grant - $30,000; Dodge Research Grant Contribution - $1,000
2022 Transition of Care Quality Improvement Grant
American Epilepsy Society
$12,5002022 Unrestricted Symposium Grant - $10,000; 2022 Parents Against Mortality in Epilepsy (PAME) Grant - $2,500
2022 Infantile Spasms Awareness Network Governance Grant - $7,000; 2022 Infantile Spasms Awareness Week Grant - $5,000