Cure Duchenne
ActivoPublic CharityMedical ResearchRealiza PRIs
About Cure Duchenne
To cure Duchenne muscular dystrophy by accelerating research, funding breakthrough therapies through a venture philanthropy model, improving care, and empowering the Duchenne community.
Focus Areas
Duchenne muscular dystrophy (DMD)gene therapyexon skipping and RNA-based therapiesclinical trialspatient care and physical therapybiotech venture investments
Who They Fund
students/learnerscommunity members/general publicresearchers/academics
Funding Style
programmatic supportresearch fundingpublic outreach funding
About Cure Duchenne
Cure Duchenne uses a venture philanthropy model to move Duchenne muscular dystrophy research toward treatments, pairing grantmaking with program-related investments. The foundation’s strategy centers on accelerating drug development, supporting translational studies, and backing work that can attract follow-on venture or industry capital. It also extends into care and community education, reflecting a mission that combines research, patient support, and public outreach. Recent awards show that the foundation funds both medical institutions and research infrastructure. A 2025 grant of $300,000 went to Neurology and Neuro Care Center for education, outreach, and research, while $200,000 supported the Foundation of National Institute of Health for the same broad purpose. The pattern suggests a funder that works across the Duchenne ecosystem rather than limiting support to a single stage of the pipeline. In addition to direct grantmaking, its active investment arm, CureDuchenne Ventures, is designed to deploy donor dollars into early-stage companies and programs developing Duchenne therapies. That mix of grants and investments positions the foundation as a financier of both scientific progress and the enabling work around it.
What Cure Duchenne Funds
Cure Duchenne supports translational research and clinical development for Duchenne muscular dystrophy, including preclinical work and trial-enabling studies. In 2025, it gave $100,000 to University of Florida for education, outreach, and research, and $60,000 to The Brigham and Women's Hospital Inc for the same broad purpose. The foundation also funds patient-facing and community-oriented work. Its active program areas include patient care and physical therapy, educational programming, and public outreach initiatives. A 2025 grant of $300,000 to Neurology and Neuro Care Center fits that pattern, linking education, outreach, and research in a clinical setting. Another strand is collaboration with research and health institutions. The portfolio includes direct project funding and collaboration funding with industry or other nonprofits, aimed at dystrophin restoration, dystrophin-independent approaches, and cardiac therapies that improve muscle function.
How Cure Duchenne Gives
The four listed recent grants range from $60,000 to $300,000, with a median of $150,000 and a lower quartile of $90,000. That puts the foundation’s recent giving in a mid-sized, project-oriented band rather than at a single standard amount. The structure is hybrid: it is a public charity, it makes program-related investments, and it also runs CureDuchenne Ventures as an impact-investment arm. The active programs show both grant funding and early-stage investment support. The recent grant list contains only 2025 awards, so recurring multi-year recipients are not visible in the supplied data. Unsolicited applications are not accepted in the active programs listed.
Financial Snapshot
Annual Giving
$660K
Total Assets
$30.9M
Total Revenue
$3.9M
Total Expenses
$9.2M
Geographic Reach
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