Raise funds to support cystinosis medical research and help find a cure for Hank and other children suffering from cystinosis.
24 Hours for Hank Inc centers its giving on cystinosis research, with donations directed to work aimed at treatments and a cure for the disease. The foundation’s grant history shows a sustained focus on the same rare disorder rather than a broad health portfolio, and its public summary ties that mission to helping find a cure for Hank and other children living with cystinosis. The two largest recent grants both went to Cystinosis Research Foundation in Irvine, California: one for $125,000 in 2023 and another for $50,000 in 2025. Those awards point to a grantmaker that channels funding into biomedical research efforts connected to cystinosis rather than into direct services or individual aid. The foundation’s stated focus areas include medical research, rare diseases, cystinosis, and health, with topic tags that emphasize rare genetic metabolic disorders and therapeutic development. In practice, that makes 24 Hours for Hank Inc a narrowly focused research funder with a consistent disease-specific mandate.
Cystinosis research is the foundation’s defining area. One recent grant provided $50,000 to Cystinosis Research Foundation in Irvine, California, “to fund research on the treatment and cure of cystinosis.” Earlier, a $125,000 grant to the same recipient supported “cystinosis research.” Those two awards show a clear emphasis on research tied to treatment and cure development. The foundation also identifies rare diseases and medical research as core focus areas, and its topic taxonomy points to kidneys, liver, muscles, eyes, and the central nervous system. Its program language extends beyond cystinosis alone to biomedical research and rare disease research, but always in service of cystinosis-related work.
Typical grants cluster in a mid-six-figure-to-five-figure range, with p25 at $68,750, a median of $87,500, and p75 at $106,250. The foundation gives as a regional grantmaker, but the recent grant record shown here is small and concentrated rather than broad. The available recent awards go to the same recipient in two different years, indicating repeated support rather than one-off giving. 24 Hours for Hank Inc is a foundation and does not fund individuals. Its active programs also state that it does not accept unsolicited requests.
$175K
$214K
$45K
$68K
Most grants fall between $69K and $106K, with a median of $88K.
25th Percentile
$69K
Median
$88K
75th Percentile
$106K
About 0% of grants go to recipients in CA.
BRIAN STURGESS
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Grantmaking is concentrated in the United States, with the recipient country distribution showing 2 grants and 100% in the US. California is the top state by grant count, and the recent grants list places both awards in Irvine, California. The foundation’s geographic scope is regional, even though the headquarters are in Sandpoint, Idaho. No grants in the provided data go to Idaho recipients.
Its giving is focused on cystinosis research, with stated support for treatments, a cure, and related biomedical research. The foundation also names rare diseases, medical research, and health as focus areas, and its topic tags include rare genetic metabolic disorders and therapeutic development.
No. Both active program entries indicate that the foundation does not accept unsolicited requests, and its grantmaking is managed through or in coordination with cystinosis research efforts.
The distribution centers on mid-sized awards: p25 is $68,750, the median is $87,500, and p75 is $106,250. The recent grants provided also include a $50,000 award and a $125,000 award, both to the same research recipient.
Its top state by grant count is California. In the recent grants list, both awards went to Cystinosis Research Foundation in Irvine, California, and the recipient-country distribution shows all grants in the US.
The recent grant record shows repeated support for Cystinosis Research Foundation in Irvine, California. That matches the foundation’s stated mission of directing donations to research efforts and organizations working on treatments and cures for cystinosis.
2025
Source: IRS Form 990-PF, fiscal year 2025.
Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| CYSTINOSIS RESEARCH FOUNDATION | IRVINE, CA | $50,000 | 2025 | TO FUND RESEARCH ON THE TREATMENT AND CURE OF CYSTINOSIS |
| CYSTINOSIS RESEARCH FOUNDATION | IRVINE, CA | $125,000 | 2023 | CYSTINOSIS RESEARCH |
CYSTINOSIS RESEARCH FOUNDATION
$50,000TO FUND RESEARCH ON THE TREATMENT AND CURE OF CYSTINOSIS
CYSTINOSIS RESEARCH FOUNDATION
$125,000CYSTINOSIS RESEARCH