The Hemophilia Alliance Group Purchasing Organization predominantly funds organizations that support people with bleeding disorders—prioritizing patient advocacy, education, treatment-center capacity, and data infrastructure. Their grants flow to national and state hemophilia organizations, treatment centers/networks, and a smaller number of international partners, reflecting a clinical and systems-oriented approach to improving care. Funding often supports core program operations, registry/data projects, and coalition-building rather than one-off events or unrestricted small grants.
The Hemophilia Alliance Group Purchasing Organization concentrates its giving on organizations that support people with bleeding disorders, with a strong emphasis on patient advocacy, education, treatment-center capacity, and data infrastructure. Its recent grants show a pattern of substantial operating support for national organizations and specialist networks, alongside smaller awards to regional chapters and technical partners that serve patients and families living with hemophilia and related clotting conditions. Two recipients illustrate that approach. The Hemophilia Alliance Foundation received $869,000 in 2025 and $675,000 in 2024 for grants or gifts to organizations that assist individuals in managing bleeding and clotting disorders. National Bleeding Disorders Foundation received $819,353 in 2025, showing continued support for a major patient-facing organization in the field. The foundation also backs treatment-center infrastructure and physician education, suggesting a grant strategy that mixes advocacy, care delivery, and clinical capacity rather than focusing on a single type of program. The grant list also includes support for the World Federation of Hemophilia, Hemophilia Federation of America, and other groups tied to the bleeding-disorders ecosystem. Across the record, the funder appears to favor organizations that can strengthen systems of care, coordinate education, and improve access to information for patients, families, and healthcare providers.
In patient advocacy and education, the foundation gave $818,427 in 2024 to National Hemophilia Foundation to promote advocacy, education and research for patients and families with bleeding disorders. It also awarded $50,000 in 2024 to Hemophilia Federation of America Inc for the same general purpose, reinforcing its support for national patient organizations. Its clinical-capacity work is visible in grants to American Thrombosis and Hemostasis Network, which received $700,000 in 2024 for enhanced data management within hemophilia treatment centers and $525,000 in 2023 for the same purpose. That same infrastructure theme appears in support for Indiana Hemophilia & Thrombosis Center Inc, which received $415,930 in 2023 and $400,000 in 2024 for Partners Physician Academy to educate early-career physicians. The funder also supports state and regional chapter work. Hemophilia Council of California received $15,000 in 2024 and $10,000 in 2023, while Bleeding Disorders Alliance of Illinois received $15,000 in 2023.
$3M
$26M
$10.9M
$8.8M
Most grants fall between $18K and $519K, with a median of $255K.
25th Percentile
$18K
Median
$255K
75th Percentile
$519K
About 0% of grants go to recipients in NY.
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Concentrated, mission-focused giving: a small number of large, repeat grants account for the majority of dollars, with multi-year or repeated support to core national/institutional partners and supplemental smaller awards to state chapters and niche organizations. Mix of large institutional grants for systems/infrastructure and modest grants for regional patient organizations; primarily US-focused with selective international support.
Notable grantees: The Hemophilia Alliance Foundation, National Hemophilia Foundation, American Thrombosis and Hemostasis Network, Indiana Hemophilia & Thrombosis Center, Inc., World Federation of Hemophilia
Grant sizes range from a p25 of $17,875 to a median of $255,000 and a p75 of $519,250, showing a distribution that includes both modest chapter-level awards and larger institutional grants. The record includes repeated support across multiple years for several recipients, including American Thrombosis and Hemostasis Network, The Hemophilia Alliance Foundation, National Hemophilia Foundation, Indiana Hemophilia & Thrombosis Center Inc, World Federation of Hemophilia, and The Coalition for Hemophilia B Inc. The foundation is a Public Charity, and the data indicate grants rather than individuals or program-related investments.
Although the organization is headquartered in Clearwater, Florida, its grants are distributed nationally and none went to Florida recipients in the recent record. New York stands out as the top state by grant count, with multiple recipients in New York City and Rochester. Other repeated recipient locations include Lansdale, Pennsylvania; Indianapolis, Indiana; Sacramento, California; Chicago, Illinois; and Milwaukee, Wisconsin. All recorded grants in the dataset went to U.S. recipients.
It gives mainly to organizations serving people with bleeding disorders, including national patient advocacy groups, hemophilia treatment-center networks, regional chapters, and groups tied to education and data infrastructure. Recent recipients include national organizations, clinical networks, and state chapters, showing a mix of advocacy, care support, and capacity-building grants.
The distribution is fairly wide. The p25 grant size is $17,875, the median is $255,000, and the p75 is $519,250. That pattern suggests the foundation makes many mid-sized institutional grants, with some smaller chapter-level awards and some larger commitments.
Yes. Several recipients appear in more than one year, including American Thrombosis and Hemostasis Network, The Hemophilia Alliance Foundation, National Hemophilia Foundation, Indiana Hemophilia & Thrombosis Center Inc, World Federation of Hemophilia, and The Coalition for Hemophilia B Inc. That indicates recurring support rather than a purely one-time approach.
The grantmaking is national, but New York is the top state by grant count. Recipient locations in the record include New York, Rochester, Lansdale, Indianapolis, Sacramento, Chicago, and Milwaukee. All of the listed grants went to U.S.-based recipients.
2025
Source: IRS Form 990-PF, fiscal year 2025.
Most recent grants reported to the IRS.
| Recipient | Location | Amount | Year | Purpose |
|---|---|---|---|---|
| THE HEMOPHILIA ALLIANCE FOUNDATION | LANSDALE, PA | $869,000 | 2025 | SEE PART IV |
| NATIONAL BLEEDING DISORDERS FOUNDATION | NEW YORK, NY | $819,353 | 2025 | SEE PART IV |
| AMERICAN THROMBOSIS AND HEMOSTATIS NETWORK | ROCHESTER, NY | $700,000 | 2025 | SEE PART IV |
| INDIANA HEMOPHILIA & THROMBOSIS CENTER INC | INDIANAPOLIS, IN | $402,000 | 2025 | SEE PART IV |
| WORLD FEDERATION OF HEMOPHILIA | ALBANY, NY | $135,000 | 2025 | SEE PART IV |
| THE COALITION FOR HEMOPHILIA B INC | NEW YORK, NY | $27,500 | 2025 | SEE PART IV |
| VERSITI INC | MILWAUKEE, WI | $8,012 | 2025 | SEE PART IV |
| NATIONAL HEMOPHILIA FOUNDATION | NEW YORK, NY | $818,427 | 2024 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK | ROCHESTER, NY | $700,000 | 2024 | ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS. |
| THE HEMOPHILIA ALLIANCE FOUNDATION | LANSDALE, PA | $675,000 | 2024 | SUPPORT FOR GRANTS AND OR GIFTS TO ORGANIZATIONS THAT ASSIST INDIVIDUALS IN MANAGING THEIR CARE OF BLEEDING AND CLOTTING DISORDERS. |
| INDIANA HEMOPHILIA & THROMBOSIS CENTER INC | INDIANAPOLIS, IN | $400,000 | 2024 | SUPPORT FOR PARTNERS PHYSICIAN ACADEMY TO EDUCATE EARLY CAREER PHYSICIANS |
| VERSITI INC | MILWAUKEE, WI | $250,000 | 2024 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| WORLD FEDERATION OF HEMOPHILIA | ALBANY, NY | $145,000 | 2024 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| HEMOPHILIA FEDERATION OF AMERICA INC | WASHINGTON, DC | $50,000 | 2024 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| THE COALITION FOR HEMOPHILIA B INC | NEW YORK, NY | $26,500 | 2024 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| HEMOPHILIA COUNCIL OF CALIFORNIA | SACRAMENTO, CA | $15,000 | 2024 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| NATIONAL AIDS MEMORIAL INC | SAN FRANCISCO, CA | $10,000 | 2024 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK | ROCHESTER, NY | $525,000 | 2023 | ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS. |
| THE HEMOPHILIA ALLIANCE FOUNDATION | LANSDALE, PA | $522,000 | 2023 | SUPPORT FOR GRANTS AND OR GIFTS TO ORGANIZATIONS THAT ASSIST INDIVIDUALS IN MANAGING THEIR CARE OF BLEEDING AND CLOTTING DISORDERS. |
| NATIONAL HEMOPHILIA FOUNDATION | NEW YORK, NY | $511,000 | 2023 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| INDIANA HEMOPHILIA & THROMBOSIS CENTER INC | INDIANAPOLIS, IN | $415,930 | 2023 | SUPPORT FOR PARTNERS PHYSICIAN ACADEMY TO EDUCATE EARLY CAREER PHYSICIANS |
| WORLD FEDERATION OF HEMOPHILIA | ALBANY, NY | $260,000 | 2023 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| BLEEDING DISORDERS ALLIANCE OF ILLINOIS | CHICAGO, IL | $15,000 | 2023 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| HEMOPHILIA COUNCIL OF CALIFORNIA | SACRAMENTO, CA | $10,000 | 2023 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
| THE COALITION FOR HEMOPHILIA B INC | NEW YORK, NY | $6,500 | 2023 | PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. |
THE HEMOPHILIA ALLIANCE FOUNDATION
$869,000SEE PART IV
INDIANA HEMOPHILIA & THROMBOSIS CENTER INC
$402,000SEE PART IV
WORLD FEDERATION OF HEMOPHILIA
$135,000SEE PART IV
THE COALITION FOR HEMOPHILIA B INC
$27,500SEE PART IV
NATIONAL HEMOPHILIA FOUNDATION
$818,427PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS.
THE HEMOPHILIA ALLIANCE FOUNDATION
$675,000SUPPORT FOR GRANTS AND OR GIFTS TO ORGANIZATIONS THAT ASSIST INDIVIDUALS IN MANAGING THEIR CARE OF BLEEDING AND CLOTTING DISORDERS.
INDIANA HEMOPHILIA & THROMBOSIS CENTER INC
$400,000SUPPORT FOR PARTNERS PHYSICIAN ACADEMY TO EDUCATE EARLY CAREER PHYSICIANS
PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
WORLD FEDERATION OF HEMOPHILIA
$145,000PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
HEMOPHILIA FEDERATION OF AMERICA INC
$50,000PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
THE COALITION FOR HEMOPHILIA B INC
$26,500PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
HEMOPHILIA COUNCIL OF CALIFORNIA
$15,000PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS.
THE HEMOPHILIA ALLIANCE FOUNDATION
$522,000SUPPORT FOR GRANTS AND OR GIFTS TO ORGANIZATIONS THAT ASSIST INDIVIDUALS IN MANAGING THEIR CARE OF BLEEDING AND CLOTTING DISORDERS.
NATIONAL HEMOPHILIA FOUNDATION
$511,000PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
INDIANA HEMOPHILIA & THROMBOSIS CENTER INC
$415,930SUPPORT FOR PARTNERS PHYSICIAN ACADEMY TO EDUCATE EARLY CAREER PHYSICIANS
WORLD FEDERATION OF HEMOPHILIA
$260,000PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
BLEEDING DISORDERS ALLIANCE OF ILLINOIS
$15,000PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
HEMOPHILIA COUNCIL OF CALIFORNIA
$10,000PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
THE COALITION FOR HEMOPHILIA B INC
$6,500PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.