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    1. Home
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    3. Pcd Ks Foundation
    Pcd Ks Foundation logo

    Pcd Ks Foundation

    ActiveMedical ResearchFunds Individuals
    BLOOMINGTON, MNWebsite6123861261

    About Pcd Ks Foundation

    The mission of the PCD Foundation is to improve the quality of life for those affected by PCD and to develop the means to find a cure.

    Focus Areas

    Primary Ciliary Dyskinesia researchClinical care and clinical center accreditationClinical trials support and infrastructurePatient registry and natural history dataPatient and caregiver education and supportAdvocacy

    Who They Fund

    clinical researchers and research teamshealthcare/clinical sites and staffpatients affected by the studied condition (unspecified)

    Funding Style

    capacity building

    Financial Snapshot

    Annual Giving

    $52K

    Total Assets

    $3.6M

    Total Revenue

    $2M

    Total Expenses

    $1.7M

    Typical Grant Size

    Most grants fall between $10K and $10K, with a median of $10K.

    25th Percentile

    $10K

    Median

    $10K

    75th Percentile

    $10K

    Geographic Reach

    Regional3 states funded

    About 0% of grants go to recipients in IN.

    Funding intensity
    Low
    High
    Headquarters

    Leadership

    MICHELE MANION

    Deep Analysis

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    Privacy PolicyTerms of ServiceSystem Status
    EIN (Tax ID): 20-0543474Latest Form 990: 2025Total assets: $3.6M3 filings on recordFind their full 990 filing →
    See If You're a Fit — FreeFree account · instant fit score · similar funders
    infrastructure support (registries/data systems)
    research grants (project funding)
    clinical development funding

    Topics

    clinical trial/clinical development supportpatient registry creation/maintenanceclinical operations/support (site resources, staffing)research infrastructure and data managementtranslational research support
    Latest 990 Filing

    2025

    Source: IRS Form 990-PF, fiscal year 2025.

    Recent Grants

    Most recent grants reported to the IRS.

    RecipientLocationAmountYearPurpose
    INDIANA UNIVERSITY RESEARCHBLOOMINGTON, IN$15,0002025REGISTRY SUPPPORT
    USCF FOUNDATIONSAN FRANCISCO, CA$10,0002025CLINICAL SUPPORT
    RILEY CHILDRENS HEALTHINDIANAPOLIS, IN$10,0002025CLINCAL DEVELOPMENT
    COLUMBIA UNIVERSITYNEW YORK, NY$10,0002025CLINCIAL DEVELOPMENT
    GORDON RESEARCH CONFERENCE—$6,7302025RESEARCH GRANT
    VANDERBILT UNIVERSITY MEDICAL CENTEDALLAS, TX$140,0002024REGISTRY SUPPORT
    SEATTLE CHILDREN HOSPITALSEATTLE, WA$60,0002024—
    VANDERBILT UNIVERSITY MEDICAL CENTEDALLAS, TX$30,0322023REGISTRY SUPPORT
    UNIVERSITY OF MICHIGANANN ARBOR, MI$20,0002023SABA AWARD

    INDIANA UNIVERSITY RESEARCH

    $15,000
    BLOOMINGTON, IN2025

    REGISTRY SUPPPORT

    USCF FOUNDATION

    $10,000
    SAN FRANCISCO, CA2025

    CLINICAL SUPPORT

    RILEY CHILDRENS HEALTH

    $10,000
    INDIANAPOLIS, IN2025

    CLINCAL DEVELOPMENT

    COLUMBIA UNIVERSITY

    $10,000
    NEW YORK, NY2025

    CLINCIAL DEVELOPMENT

    GORDON RESEARCH CONFERENCE

    $6,730
    2025

    RESEARCH GRANT

    VANDERBILT UNIVERSITY MEDICAL CENTE

    $140,000
    DALLAS, TX2024

    REGISTRY SUPPORT

    SEATTLE CHILDREN HOSPITAL

    $60,000
    SEATTLE, WA2024

    VANDERBILT UNIVERSITY MEDICAL CENTE

    $30,032
    DALLAS, TX2023

    REGISTRY SUPPORT

    UNIVERSITY OF MICHIGAN

    $20,000
    ANN ARBOR, MI2023

    SABA AWARD