What does Acid Maltase Deficiency Association Inc fund?

It funds Pompe disease research, including rare-disease and lysosomal storage disease research. The active grant programs are designed for research directly related to Pompe disease, and the recent grants include support for academic research and therapeutic development.

How large are its grants?

The typical grant size is $100,000 at the 25th percentile and median, with the 75th percentile at $200,000. A recent award reached $300,000, showing that the foundation can make larger research commitments in selected cases.

Can researchers apply directly?

Yes. The Helen Walker Research Grant accepts unsolicited applications. It is a one-time research grant and the funds must be used entirely for Pompe research with no indirect costs.

Does it fund individuals or only organizations?

It funds individuals as well as institutions. The recent grants include an award to a named researcher, alongside grants to McMaster University and M6p Therapeutics Inc.

Is the giving limited to one place?

No. The data shows a local geographic scope overall, but recent grants went to recipients in Germany, Canada, and the United States. Missouri has the highest grant count in the dataset, while Texas received none.

Acid Maltase Deficiency Association

Name: Acid Maltase Deficiency Association — grants, 990 financials & funding data
Creator: Kindora

ActivePhilanthropy & VoluntarismFunds Individuals

SAN ANTONIO, TXWebsite2104946144

About Acid Maltase Deficiency Association

The foundation makes targeted, disease-specific research investments focused on Pompe disease (acid maltase deficiency). It concentrates funding into a small number of relatively large awards that support investigator-led projects, academic labs, and early-stage therapeutic developers. Grants are directed toward advancing scientific understanding and translational therapeutics rather than broad service or advocacy work.

Focus Areas

Pompe disease / acid maltase deficiency biomedical researchInvestigator-led clinical and translational research (clinician-scientist grants)Support for small biotech therapeutics development (enzyme replacement/gene therapy)Academic university research programs with clinical/translational focus

Who They Fund

people living with Pompe diseaseresearchers and clinician-scientists focused on rare genetic disorders

Giving Approach

Small portfolio (few grants) of relatively large, targeted awards; primarily one-off or single-year research grants distributed to individual investigators, universities, and early-stage companies; funding appears focused and international rather than broadly distributed.

About Acid Maltase Deficiency Association

Acid Maltase Deficiency Association Inc centers its giving on Pompe disease research and has used a small number of relatively large awards to support investigator-led science and translational therapeutic development. The latest 990 year on file shows $500,000 in annual grants against $812,819 in assets, with a typical award size of $100,000 at the median and $200,000 at the 75th percentile. Its active grant programs require that funds go directly to Pompe research and exclude indirect costs, which keeps the support tightly tied to project work. Recent awards show the foundation backing both academic and therapeutic-development settings. It gave $300,000 to Dr Benedikt Schoser for the 2021 Helen Walker Pompe Disease Research Grant, a grant name that appears in multiple cycles. It also made $100,000 awards to McMaster University and M6p Therapeutics Inc for further research of disease. The pattern points to a funder that directs capital toward scientific understanding and therapy development for acid maltase deficiency rather than broad service grants.

What Acid Maltase Deficiency Association Funds

The foundation’s core theme is Pompe disease, and its active Helen Walker Research Grant is built around that diagnosis. The grant is offered as a one-time research award, has appeared in multiple cycles, and can range from $150,000 to $300,000 for work directly related to Pompe research. It also supports university-based and clinician-scientist research. A 2025 grant to McMaster University was designated “to further research of disease,” which fits the foundation’s emphasis on academic and translational work. Therapeutic development is another clear thread. M6p Therapeutics Inc received $100,000 for further research of disease, showing that the foundation funds early-stage development alongside investigator-led research. The program descriptions also point to enzyme replacement and gene therapy as part of its research scope. Across these awards, the focus stays on biomedical research for rare genetic disease rather than advocacy or broad patient services.

How Acid Maltase Deficiency Association Gives

Grantmaking is concentrated in relatively large awards: the typical grant size is $100,000 at both the 25th percentile and median, and $200,000 at the 75th percentile. The top recent award was $300,000, which is well above the center of the distribution. The foundation makes one-time research grants, and the Helen Walker Research Grant has been offered in multiple cycles, indicating repeated programmatic giving rather than a one-off event. It also accepts unsolicited applications for that grant program. The organization funds individuals as well as institutions, which matches the mix of investigator-led and university-based support in the recent grants.

Financial Snapshot

Annual Giving

$200K

Total Assets

$813K

Total Revenue

$876K

Total Expenses

$861K

Typical Grant Size

Most grants fall between $100K and $200K, with a median of $100K.

25th Percentile

$100K

Median

$100K

75th Percentile

$200K

Geographic Reach

Regional1 state funded

About 0% of grants go to recipients in MO.

Funding intensity

Low

High

Headquarters

Funding intensity

Low

High

Where Acid Maltase Deficiency Association Funds

Top 3 recipient countries by grant volume for Acid Maltase Deficiency Association.

Rank	Country	Grants	Total	Share
1	Germany	1	$300K	33.3%
2	Canada	1	$100K

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Recipient	Location	Amount	Year	Purpose
M6P THERAPEUTICS INC	ST LOUIS, MO	$100,000	2025	TO FURTHER RESEARCH OF DISEASE
MCMASTER UNIVERSITY	HAMILTON, ON	$100,000	2025	TO FURTHER RESEARCH OF DISEASE
DR BENEDIKT SCHOSER	MUNICH, BA	$300,000	2024	2021 HELEN WALKER POMPE DISEASE RESEARCH GRANT

Acid Maltase Deficiency Association

About Acid Maltase Deficiency Association

Focus Areas

Who They Fund

Giving Approach

About Acid Maltase Deficiency Association

What Acid Maltase Deficiency Association Funds

How Acid Maltase Deficiency Association Gives

Financial Snapshot

Typical Grant Size

Geographic Reach

Where Acid Maltase Deficiency Association Funds

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Funding Style

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Frequently Asked Questions About Acid Maltase Deficiency Association

What does Acid Maltase Deficiency Association Inc fund?

How large are its grants?

Can researchers apply directly?

Does it fund individuals or only organizations?

Is the giving limited to one place?

Recent Grants

Open Grant Opportunities

Helen Walker Research Grant (AMDA Research Grant)

Acid Maltase Deficiency Association

About Acid Maltase Deficiency Association

Focus Areas

Who They Fund

Giving Approach

About Acid Maltase Deficiency Association

What Acid Maltase Deficiency Association Funds

How Acid Maltase Deficiency Association Gives

Financial Snapshot

Typical Grant Size

Geographic Reach

Where Acid Maltase Deficiency Association Funds

Unlock Deep Analysis

See Similar Funders

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The Grant Brief

Funding Style

Topics

Where Acid Maltase Deficiency Association Makes Grants

Frequently Asked Questions About Acid Maltase Deficiency Association

What does Acid Maltase Deficiency Association Inc fund?

How large are its grants?

Can researchers apply directly?

Does it fund individuals or only organizations?

Is the giving limited to one place?

Recent Grants

Open Grant Opportunities

Helen Walker Research Grant (AMDA Research Grant)