Fundación Stop Sanfilippo is a highly mission-specific funder focused on the rare genetic disorder Sanfilippo syndrome (MPS III), supporting both biomedical research and direct family assistance. Its giving combines disease-focused research funding with practical, family-centered support such as palliative therapies, psychological care, respite, and assistive equipment. The foundation appears to prioritize specialized partners in Spain and international collaborators working on experimental treatments and lysosomal disease research.
Invite-only support with two main streams: direct family aid and research funding. Family assistance is budgeted at about €10,000 per month overall, while research is backed by a dedicated pool of roughly €2 million; individual grant sizes are not publicly specified and appear to be awarded case-by-case.
This is an invite-only funder, so unsolicited applications are unlikely to be accepted. Organizations working on Sanfilippo syndrome should build relationships through the foundation’s research and family-support networks, and clearly align proposals to either direct patient/family relief or Sanfilippo-specific biomedical research.
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Current and upcoming funding from Fundación Stop Sanfilippo that your nonprofit may be able to apply for.
Who can apply: Parents, mothers, or legal guardians of a diagnosed Sanfilippo patient who is already registered in the patient registry may request aid.
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Create a free accountDeadlines and eligibility are summarized from public sources and may change — always confirm the details on the funder's official application page before applying.