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    3. 24 Hours for Hank
    24 Hours for Hank logo

    24 Hours for Hank

    ActiveDiseases & Disorders
    SANDPOINT, IDWebsite2082558255

    About 24 Hours for Hank

    Raise funds to support cystinosis medical research and help find a cure for Hank and other children suffering from cystinosis.

    Focus Areas

    Medical researchRare diseasesCystinosisHealth

    Who They Fund

    people with cystinosisfamilies and caregivers of cystinosis patientspatients with rare genetic disorders

    Funding Style

    disease-focused biomedical researchtreatment- and cure-oriented fundingtranslational/therapeutic developmentresearch project grants

    Topics

    About 24 Hours for Hank

    24 Hours for Hank Inc centers its giving on cystinosis research, with donations directed to work aimed at treatments and a cure for the disease. The foundation’s grant history shows a sustained focus on the same rare disorder rather than a broad health portfolio, and its public summary ties that mission to helping find a cure for Hank and other children living with cystinosis. The two largest recent grants both went to Cystinosis Research Foundation in Irvine, California: one for $125,000 in 2023 and another for $50,000 in 2025. Those awards point to a grantmaker that channels funding into biomedical research efforts connected to cystinosis rather than into direct services or individual aid. The foundation’s stated focus areas include medical research, rare diseases, cystinosis, and health, with topic tags that emphasize rare genetic metabolic disorders and therapeutic development. In practice, that makes 24 Hours for Hank Inc a narrowly focused research funder with a consistent disease-specific mandate.

    What 24 Hours for Hank Funds

    Cystinosis research is the foundation’s defining area. One recent grant provided $50,000 to Cystinosis Research Foundation in Irvine, California, “to fund research on the treatment and cure of cystinosis.” Earlier, a $125,000 grant to the same recipient supported “cystinosis research.” Those two awards show a clear emphasis on research tied to treatment and cure development. The foundation also identifies rare diseases and medical research as core focus areas, and its topic taxonomy points to kidneys, liver, muscles, eyes, and the central nervous system. Its program language extends beyond cystinosis alone to biomedical research and rare disease research, but always in service of cystinosis-related work.

    How 24 Hours for Hank Gives

    Typical grants cluster in a mid-six-figure-to-five-figure range, with p25 at $68,750, a median of $87,500, and p75 at $106,250. The foundation gives as a regional grantmaker, but the recent grant record shown here is small and concentrated rather than broad. The available recent awards go to the same recipient in two different years, indicating repeated support rather than one-off giving. 24 Hours for Hank Inc is a foundation and does not fund individuals. Its active programs also state that it does not accept unsolicited requests.

    Financial Snapshot

    Annual Giving

    $175K

    Total Assets

    $214K

    Total Revenue

    $45K

    Total Expenses

    $68K

    Typical Grant Size

    Most grants fall between $69K and $106K, with a median of $88K.

    25th Percentile

    $69K

    Median

    $88K

    75th Percentile

    $106K

    Geographic Reach

    Regional1 state funded

    About 0% of grants go to recipients in CA.

    Funding intensity
    Low
    High
    Headquarters

    Leadership

    BRIAN STURGESS

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    Privacy PolicyTerms of ServiceSystem Status
    EIN: 26-2856413
    2 filings on record
    cystinosis researchrare genetic metabolic disordersdrug and therapeutic developmentgene- and molecular-therapy approachespreclinical and clinical research

    Where 24 Hours for Hank Makes Grants

    Grantmaking is concentrated in the United States, with the recipient country distribution showing 2 grants and 100% in the US. California is the top state by grant count, and the recent grants list places both awards in Irvine, California. The foundation’s geographic scope is regional, even though the headquarters are in Sandpoint, Idaho. No grants in the provided data go to Idaho recipients.

    Frequently Asked Questions About 24 Hours for Hank

    What is 24 Hours for Hank Inc focused on funding?

    Its giving is focused on cystinosis research, with stated support for treatments, a cure, and related biomedical research. The foundation also names rare diseases, medical research, and health as focus areas, and its topic tags include rare genetic metabolic disorders and therapeutic development.

    Does 24 Hours for Hank Inc accept unsolicited grant requests?

    No. Both active program entries indicate that the foundation does not accept unsolicited requests, and its grantmaking is managed through or in coordination with cystinosis research efforts.

    What is the typical grant size?

    The distribution centers on mid-sized awards: p25 is $68,750, the median is $87,500, and p75 is $106,250. The recent grants provided also include a $50,000 award and a $125,000 award, both to the same research recipient.

    Where does 24 Hours for Hank Inc give most often?

    Its top state by grant count is California. In the recent grants list, both awards went to Cystinosis Research Foundation in Irvine, California, and the recipient-country distribution shows all grants in the US.

    Who receives the foundation’s grants?

    The recent grant record shows repeated support for Cystinosis Research Foundation in Irvine, California. That matches the foundation’s stated mission of directing donations to research efforts and organizations working on treatments and cures for cystinosis.

    Latest 990 Filing

    2025

    Source: IRS Form 990-PF, fiscal year 2025.

    Recent Grants

    Most recent grants reported to the IRS.

    RecipientLocationAmountYearPurpose
    CYSTINOSIS RESEARCH FOUNDATIONIRVINE, CA$50,0002025TO FUND RESEARCH ON THE TREATMENT AND CURE OF CYSTINOSIS
    CYSTINOSIS RESEARCH FOUNDATIONIRVINE, CA$125,0002023CYSTINOSIS RESEARCH

    CYSTINOSIS RESEARCH FOUNDATION

    $50,000
    IRVINE, CA2025

    TO FUND RESEARCH ON THE TREATMENT AND CURE OF CYSTINOSIS

    CYSTINOSIS RESEARCH FOUNDATION

    $125,000
    IRVINE, CA2023

    CYSTINOSIS RESEARCH